Posted Today 2:04 AM (GMT 0)
Hi Tracy and Blue,
Thank you, thank you. I wish I could take FULL credit for inventing that trick with the hand soap, but my stoma nurse at Lahey taught me that. I too at first tightened my stomach muscles before I learned of the soap trick and the pushing to get the "click" did not hurt so much.
BUT THEN, I calculated, this clicking thing is for life for me. IF I stay OK and nothing happens to me and I go of old age, that could be 30 years of that intense pressure of clicking that thing on. THEN is when I thought of preassembling them and then just pressing it on with the see through bag.
Tracy, Dec. 7 I see my surgeon to see if he thinks I have the beginning of a peristomal hernia. I read on the net that unless it is obvious exam alone cannot determine. I called the radiology dept at lahey and asked what imaging they use to see if one is starting. The tech said ultrasound, CT scan or MRI. I am going to ask which one of these could tell me as I need to know. I did order a custom made Nu-Hope and they are going to put darts up the sides. I also cut a hole in a 4" self adhesive ace bandage and will try it just around the house to see if it gives me some added support. I put nail polish around the hole in the ace that I am going to drop the bag through so it won't run. That trick I got from a 74-year-old ileostomate who has had her ileo since she was 24! She had her peristomal hernia fixed 3 times and it always came back so she just uses the Nu-Hope and hopes for the best. BUT she is 74, I am only 55, you are much younger auuuuugh! None of us should have to be going through all this. But it is as it is. Glad my tips were helpful. Rosemary