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does anybody have bad diarrea with their ileostomy?

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Posted 12/20/2011 1:13 AM (GMT 0)
I have diarrea 3-4 days per month and often have to stay home from work, because my bag fills up so quickly that it is difficult to empty. Does anybody else have this problem and if so, is there anything that we can do?
Posted 12/20/2011 1:27 AM (GMT 0)
Sorry you're having this problem, definitely not what you want after the surgery.

What have you tried already? Do you take immodium or lomotil or something like that? Any thickening foods? (Mashed potatoes, marshmallows, pasta, and other mushy white foods seem to be good). Have you talked to a gi doctor about it?

Is it tied to anything else? What you eat? Menstrual cycle?
Posted 12/20/2011 2:31 AM (GMT 0)
Are they episodes where the bag fills very rapidly with clear yellow bile every 15 minutes or so hour after hour?

I have had a few of these attacks while traveling. One was traced to bad tap water. The others followed fake sugar and sugar binges and one was after european caffeine coffee. These are really scary.

I just chucked in the immodium and prayed. One I ended up with dry heaves. THEN thank god the immodium kicked in as I was in transit through Europe at the time.

Do you keep a food log? How long have you had your ileo?

Rosemary
Posted 12/20/2011 11:13 PM (GMT 0)
Rosemary, I usually eat raisin bran every morning and that seems to keep it mushy in my bag. I'm not aware of eating anything differently in my diet that would give me diahrea. I drink lots of water and Gatorade daily. I've tried immodium, but it hasn't worked for me in the past. I'm not sure what to do. I may have to call Cleveland clinic again, unless someone has a better idea.

Butterfly
Posted 12/21/2011 1:20 AM (GMT 0)
With immodium I found I couldn't just take it as and when I needed as it wouldn't work properly. If I took it in regular doses and 30 minutes before I ate it worked really well. Sometimes it is trial and error to get to get the dose right.
Posted 12/21/2011 2:06 AM (GMT 0)
My Imodium experience has similar, stripey. If I just randomly take it, it doesn't do much. I'm on the 30 minutes before meals and one at bedtime regimen.

Butterfly: this is the kind of stuff you are supposed to call them about. Please do before you get too dehydrated. :-)
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