Full day and no leaks! (may be a boring post thought)

Today I walked from my apartment to the doctor without any leakage (used the toilet there) and then walked to the main train station (didn't feel any leak), sat in the train for the whole hour ride and checked in the station bathroom, a bit grubby but no leak, took the tram to work, no leak. Amazing. Had  a bm there in the afternoon that looked like a real, formed bm. Then meetings, had a bm before leaving at 6:30 and walked the 25 minutes to the train station, took the hour-long train ride back home during which I could have sworn I felt leakage, but when I got home, no leaks. I am truly amazed.

Maybe I am making progress with my pouch, or maybe it is helped by the immodium/opium tincture I take, but I also had leaks while taking these one week ago.

It was great day t work and got me motivated to fight for my job, and I decided which colleagues I want to support me with regard to the executive director, they are both his staff. I jsut need to talk to my boss tomorrow and finish wriitng this ridiculous summar of everything I have done since June 1 2011. I was in such a lousy mood lasst night that what I wrote sounds like I was in a really lousy, sarcastic mood.

Subzero, thanks for writing today despite feeling so weak. I hope you are getting a lot out of your rest. Please make sure you are not dehydrating (dehydration made me feel horrifyingly weak) and getting enough iron. Do you want to have blood work done? I can't remember if you had written having it done recently

Ric did you go back to the hospital and show that to them?

I rang my pouch nurse and she said not to worry about it, but to get my local nurse to look at it.

So they've out me on antibiotics and I'm getting it dressed by the nurse again tomorrow. Hoping it'll seal up again soon.

I have blood tests done every Monday and they have been normal. Weakness is probably due to doing too much yesterday. Thank you for asking. I am sure I'll be fine tomorrow.

ughh this freaks me out, as i hve just had my takedown yesterday....im so afraid of leaks, and having to go 15 time a day. sorry if youve explained this elsewhere, but how many times a day do you go? how much immodium do you take/how often? do you take fiber? butt burn? leaks at night?

im literally at the point where my intestines havent even woken up yet, and theres a concern about an ileus, but once i get going, id love to share now things are going for me, seeing that we are on a similar track as to when we had this all done.

about the odor - the output from my stoma before takedown never smelled very much and if anything, it only smelled like what I had eaten. Now, after take-down, it still doen't smell.

What I am experiencing is what I am experiencing, and it sounds like each take-down experience is very individual. I was going 18 times a day when I was still in the hospital. I take psyllium husk and it is reduced, I also take immodium and opoium ticnture and I am down to 8-11 3-4 weeks after take-down.

Just a tip: if you respond to someone else having a hard time, it might be nicer if you don't write things like "ughh this freaks me out" for the very reasosn that this perosn is already having a hard enough time and was looking for support, not the opposite.

Hi B-D,

Was happy to read your first post about no leaks!! Hopefully that was the first day of what is to become a much smoother ride for you! Remember that no matter what, your life is not ruined, as you always have the "plan B," that you didn't seem to mind in the first place, to fall back on. Don't get discouraged. It sounds like the first year with whatever path we choose is a big adjustment period filled with trial and error.

Well in that case I do pray it all works out for you. I got the ostomy to avoid issues, and now, as it turns out, everything that could have gone wrong has. I won't allow mysef to have regrets, but it is getting discouraging, I must say.

B-D, you don't have to apologize. I shouldn't have assumed you were okay with the ileo. You always have such a good attitude and hadn't complained while you had it, so that's why I assumed. I forget that, even now, I am trying to make the best of my situation because I know I can't change it, but that doesn't mean I'd be fine with this situation if I had a better option.

Now I am really furious and cursing fk fk fk fk my effing neighbor downstairs is invading both my work and personal email accounts and bugging me to go to the theater with him. He is a really young pain in the effing posterior. He started bugging me about being able to hear my steps, just before my jpouch op in December and insisting that the housemanagement pay for a new floor -- but in my apartment, and then all these guys came in here with my neighbor's father and they disccused it among themselves, but forgot that they should discuss it with me (it's just my apartment they were talking about). So I told them I was about to go into the hospital and would have to have 2 op's in the next 3 months, and that nothing was going to happen in my apartment for at least another 3 months -- IF AT ALL. And then: the guy from the house administration aasked my neighbor's father if that was alright with HIM. He answered, yeah, as long as she isn't here during that time.
No comment, and no wonder I threw everyone out of my apartment and wrote the neighbor an email saying basically, eff off.
What is this crap now with theater tickets?

B'Dereh,
Do not worry. It is not a career death sentence. You may find that you have far more supporters than you know.
I had a horrible legal battle with my supervising editor at my favorite newspaper. I was being sexually harassed and threatened by a photographer. He left bottles of poisoned wine at my apt., left drawings of mutilated genitals and knives at my desk and during the middle of an intense interview with an archbishop whispered questions in my ear about my favorite sexual positions. When I reported it to my editor, she told me to "deal with it" because I brought it on by being young and pretty.
Needless to say I hired an attorney and threatened a law suit. The attorney had me do a summary of all my articles and books published, company morale builders I had started or participated in and anything I had done to help other reporters and editors. The managing editor came down in my favor but was very cold and rude to me after that. This was about 10 years before we had any legal sexual harassment protections.
I felt like I had no support and left my career. I was only 22 and felt incredibly alone. Iwas comparing myself to 35 year-olds and did not realize that having my own byline at a large daily paper plus having published three books already was a huge accomplishment.
Later I found out that I had tremendous support from the publisher and a majority of the editors. Leaving the paper is my greatest regret.
If you love what you do, then fight it through to the end.

Post Edited (Subzeromambo) : 4/15/2012 12:14:45 PM (GMT-6)