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Long time gone by but Mom's post op now

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Posted 10/9/2012 1:09 AM (GMT 0)
Hi all,

Hope your all hanging in there. It's been a while since I've written but just didn't find the time while caring for Mom. So sorry about that.

Mom is post op since 8/28/12 when she had her ileostomy reversed and intestines re connected. After a tough couple of weeks in the hospital, 10 days of which she was in isolation because of infections she's been home for nearly a month now and she is literally like a water faucet. All day every 15 to 20 minutes she goes, no warning yet (except 1 time) and she is just drained. Looks so and is so weak and wan. She's lost a lot of weight, a little that she needed to get rid of but she's still declining up to 5 lbs a week.

She's on an IV for 12 hours out of 24 of just saline to keep her hydrated. Also she is taking psyllium, lomotil, Imodium and a new powder she just got today after each movement, Dr.s ordered her to take the lomotil after every loose stool. They'd be gone in a few days?

From what I've been reading the food thing can be an issue but not everyone has the same food problems so that leaves me wondering how we can tell, when whatever she eats is gone in 15/20 mins?

Any help would be appreciated. An approx. eta on how long this stage lasts would be great, if there is one. Her dr.s tell her she is doing just fine and give it time. Easy for them to say when she just wants to get on with her life and put this all behind her. (lol)

Thank you for reading this and leaving a reply if you do. I look forward to hearing from you all.

Posted 10/9/2012 2:22 PM (GMT 0)
Forgot to say who I was! D'oh! Toritoo
Posted 10/10/2012 4:26 PM (GMT 0)
Lots of people have looked at my post about my Mom post op but noone has left a message, does that mean there is no answer? Or like everyone is different so we have to wait and see and hope she doesn't die. Oh well, I guess that's all I can do.

Thanks anyways,

toritoo confused

Posted 10/11/2012 2:34 PM (GMT 0)
I can only tell you about my experience. I had a volvulous and the result was about 18 inches of colon removed and an ileostomy for about 2-1/2 months. After I got reconnected, I stayed with the ileo diet for about a month. It was. Variation of the BRAT diet that is used for babies with diarrhea. In my case, I used the BRATY diet. I also, like your mom, had to gain weight. I would start and end the day with a Banana and Yogurt, as they helped to firm things up for me. I would also have Toast in the morning and with a sandwich for lunch. I had white Rice with dinner. For some people, Applesauce helps things, but it just mad me more watery, so I skipped the A part. I would augment this with Ensure nutrition drinks to help get quality calories, vitamins and electrolytes back in me. It seems to have worked as I am back to my regular weight and also back to a standard diet.
Posted 10/11/2012 3:22 PM (GMT 0)
Thank you Bay Area Guy, that's helpful information. I know everyone is different but still there has to be some things that work for most people. I'll try this, though we already do the banana thing and yogurt but should probably get more rice into her.
Thanks again, I really appreciate your reply.
toritoo
Posted 10/11/2012 10:30 PM (GMT 0)
Best of wishes for a speedy recovery for her.

PS. Make sure it's white rice. Brown rice has too much fiber for her ostomy to handle.
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