OH BROTHER! I am in trouble!

OK up all night in pain.  very  little output and no gas passing.  now i just had coffee, yogurt, and orange juice and very little output.  usually i have a bag full by the end of breakfast.  in bad pain.  Glad i went on the sedona trip yesterday.  I think i am going to go over to my docs office.  she is in today.  I am terrified.  If i had normal veins I would not be so scared but if i need an IV i have no clue where they will put it.  Rosemary

Sorry to hear this rosemary have you tried the grape juice ?
Hope the doc is able to help you
Just got out of hospital and still feeling tired hope the iron infusion kicks in soon , Aso got a surgeon reccomended to me who is suppose to be the best around my area so hospital has had some benefits for me , hope your feeling better
Lucky

thx, lucky and scott,

the stoma finally started as i was walking over so i ended up just keeping the wed. appt. it like gushed out all at once. thank god! something not right. it is now sort of curling to the right. I have taken pics as it was new to now so i had some printed out and am bringing them with me.

on sarahs thread i dovetailed on what lucky said about total colectomy make small bowel adhesions. I sure hope this ileostomy surgeon who created the perfect stoma, did not screw it up by taking out my unused colon without my consent. had we even talked of that i would have said no leave it in me as i am an adhesion former. some of the pain is up under my right rib cage like where the colon is anchored. then the pain goes right across my abdomen just in the path of the transverese colon. hmmmmm! makes me wonder.

I am weak and hungry and just had some yogurt. i guess that will be all. I tried to see if i could get something for sleep and was told melatonin. oh boy! they just refer that stuff off to the PCP. mine did refill a new script but it needs to get here. it will arrive tomorrow. likely after one more sleepless night.

i did have a piece of pound cake yesterday in sedona then i had to drown it out of my stoma with grape juice and coconut water and induce that diarrhea to get it out of me as this stoma cannot move in and out like my first one could.

maybe i will just have the yogurt and some water so I won't have to make the diarrhea tonight. Maybe that is getting hard on my gut.

i have never seen a stoma that does not peristalse in and out!

it is perfect in form but poor in function. yet at first it worked just fine til it tipped to the right. man!

lucky who did you find for a surgeon? did you find someone skilled in adhesion issues? Rosemary

Darn!!!!!

thx the only breaks i catch are bad ones. all i can say is that life as a normal ostomate was all good. those were good old days never thought i'd say that. R

Why does it block? when you have the normal plumbing it doesn't block, what does difference does it make if it goes out in a bag or in the arse?

If I go in my backyard and decide to cut the hose in half, it will still output just as much water as before without any blockages. ***.

also to make an ileostomy the bowel is sort of angled out through the abdomen, so even if the stoma does not have adhesions or there are none further in, the angle is still there. Maybe another reason not to have any surgery somedude IF you can manage satisfactorily as you are th4at is....all things are relative.

ddd i will look up that link. sounds like my issue.

christine yes that was a blockage. i blocked up last night on no fat yogurt and rice crispies and milk had the pain an nausea of a full blown small bowel obstruction with all the periumbilical pain. unless i started throwing up i was determined to stay out of the er. so i was able to drink grape juice and finally get a diarrhea going and it all came out thank god. i did catch a bit of sleep but am bedding down now at 3:30 pm and will hopefully sleep about 15 hours. i have not slept for 4 nights. the docs office said just stay on clears today so obviously not much energy still have crampy pain so i am sure an adhesion is going nuts in there but as long as i can drink and not vomit i ain't going near the er. my veins are shot so i cannot just get an iv it turns into getting a port or picc line and all that. my picc area still hurts from september.

as i said before i sure wish this doc had not removed my unused colon just because of mucous as the colon goes the full width of the abdomen and those adhesions may be wrecking the small bowel and the new stoma. like this doc sabotoged her perfectly formed ileostomy stoma by doing the unconsented colon resection. just cannot believe it. isee doc tomorrow. i am going to ask her if there are stoma docs in europe who have guaranteed results with sprayshield adhesion barrier that they do not have access to here in the US. she is out of the US most of the time so she likley may have some contacts. Maybe i should have started that way rather than have another US surgery. Other parts of the world are ahead of the US.

otherwise, it is only a matter of time, because without eating we don't last long. I did it before for 13 months but i just don't have that in me any more. been thru too much. pray for me that i get some sleep and don't vomit and can keep drinking. at this point it is a 5 minute at a time issue.

g'night all. RJ

yep all our problems so different but still difficult. If you have not had many or any prior surgeries and they could do this maybe lapro you likely would not have any issues with stomas like i do. the actual having of a good working stoma is actually quite easy to get used to......but like you said, you know what you have now........keep checking those options on all these boards like you are. the solution will come to you. R