Thanks all. Finally got backon tonight. Spent yesterday afternoon in the ER here. I was without the big drainage tube that was tried last week to dilate the stoma. The surgeon put in a very wide diameter drainage tube last tues. It started me having massive diarrhea. I was told to then go eat beacuse with all this diarrhea i would have to eat solid foods to calm it down. I have to say i had a fun day eating real food. Eggs, bread, my usual stuff like back when my first stoma worked. Well the food backed up in back of the stoma drain tube and in back of the stoma. I had to walk miles and drink grape juice.
Picture this. This emergency revsion.NOv 15 works 5 days then quits out basically. 10 days later the doc putsin this huge tube. End iof48hours they were going to pull the tube and see if this dilating big tube did any good. I asked where to go to get the tube pulled. The resdient says you are going to do it. I said how far in does it go? He says 15 cm that is about
4 inches. The thing is as big around as my small intestine diameter. I am like i won't be pulling that. So i ask the stoma nurse and she says no. Then next day on day 3 i am in pain from the tube. Resident gives his speech don't call the stoma nurse and don't email the doc. So he takes the tube out and it wss only in an inch! I could have done it.
So their plan B was to have me stick a much smaller. Dilator not a drain into my stoma 3 times a day for 30 mins each time. The day the big "garden hose" was removed i only went in their twice as that stoma was so swollen that even the actual stoma was sore and they have no nerve ending. So the next day i try the three times. By sat night i could not get the small dilator in. And i start going into pain.
Sunday am i cannot get it in and ha ve severe abdominal pain and NOTHING is passing. My intestines are really noisy and blocked with no output and i am very distended. I call the resident and say could not get the dilator in sat night or sunday am, am in pain, no output do i got to the ER? Will the ER have a clue what to do? He says go if you want to. I am like its not a matter of wnat its a matter of need. So a couple i am friends with at the hotel get into the act on my behalf. The husband calls the resident and says "my aunt is in pain, nothing is coming out of her stoma and the dilaotr will no longer fit"m. The resident said get her right to the ER!
So we go and by then i am moaning in pain. They were wonderful. Got us right in, gave us our own waiting room so i would not be exposed to others germs and got us right into a room all inab out 15 mins. Had a sweet nurse. Er doc listens to my distended stomach and says your intestines sure are tryin to push stuff along. He read all my reports and said MY what a road you have been down. He said this is surgical service i will get someone rught away. Not knowing how long that would be the burse offers me a shot of morphine. My friends were like go for it. I normally would not hasve but this wa s over the edge. I did know tho that as soon as the resident put a tube back in my stoma and drained all the air and crap out of me the pain would go, but who knew how long he would be so i took the shot.
Wouldn't you know that would be the day he comes right to the ER. Checks my stoma with his little finger gently and says this is stenosed worse than the other day. I said did that huge tube irritate it or scar it in more. He said - don't know but you need another one i said i know. So he put a smaller one in that immediately filled with air and lots of poo. The ER doc and nurse breathed a sigh of relief in harmony with me. So balmed on morphine and deflated i wa felling qiote good. Came back to the hotel and slep all afternoon.
They said eat and i was like NO! Last time the gunk backed up in back of hte stoma and tube but i was able to walk this time i was morphined and could not. This time as the tube was not a monster it did not induce diarrhea. So i could just sleep. Slept a lot today too but had milky products. Those gunked snd i had to do the whole waling and grape juice thing.
I thought the tube had fallen out as i was insome pain but not like yesterday and thru the gunk it looled like the tube was no longer in the stoma and not much had passed. Was all set to hit the er for reinsertion but then grape juice swished thru thwre and cleaned it off and i could see it was still in. So svaed a trip to er. Bag is full of air as that is a good thing. I am sooooo hungry bt no way am i eating.
So stoma nurse tomorrow. My doc "out of the country" again! So am requesting consult with another attending. I also have to see a nutritionist and ask about
TPN as i cannot just live on nothign. Even the clear shakes did not move thru today.
The ER andhead resident said no surgery for 6 months at least as this whole area is so inflammed. Plus i know i have adhesions inside. And i think the stoma site is shot. Time to find a doc more caring of my needs with adhesion barriers, not so away all thetime etcm. - have a few leads but wonder if anyone can save me. The plan is to keave the tube in. It gets uncomforta ble but beats the alternative.
Pray for me. Things going basd to worse.
Rosemary
Post Edited (esoR) : 12/3/2012 10:34:54 PM (GMT-7)