back to the ER Rosemary

Yep it was a turn off. So was my sbo hospitalization at brighams (where ironically a resdient had misread my original defecogram scan sayimg I had a sigmoidocele when I did not (unkniwn to me at the time) turned out her teacher did not cross check and co-sign as is legal protocol, thus 3 CR surgeons opined based on wrong read scan, including a CR surgeon at brighams, then down the road we went with the unneeded sigmoid resection, all that that caused, then into stoma land, then stoma revision land. So boston not give me the good care and accuracy of diagnosis that most get. Yep I think no lawsuits is thir motivation behind the whole thimg that we were talking about. You were right. Stoma was cold last night to the touch when I changed bag. That means lasck of blood flow coulde explain the issue. I got info on sprashield from a friend so I think I need Jens pagels in germany with spray shield and whoever he comes up with for stoma revision. Had correspoinded with him prior to coming to az and he was very real and very nice but did say he is only a gyn but could get a general surgeon to redo my stoma then they would use sprayshiled on the lysed adhesions. But at that time I was thinking colorectal "expert" here in the US. But adhesions win out. I think those are what preveted a tension free stoma as the bowel is reachoring in scaf tissue. Hence the crooked shape, the tension on one side, and the stricture. They all go together. RJ

Sunnee

Thanks. Will check the sites. The thing with adheions is there is nothing that can be done about them without more growing.

I emailed an adjesion doc in germany (a real one not the quack but he is not a colorectal surgeon too. He has access ot sprayshield as it is used over there. I also emailed the ounder of sdhesionmorg. I had talked to the founder long ago andhe toldme that he just founded the organization but he was not helpful or did he know of any adhesion docs. But thanks. Your heart is in the right place.

My hired social worker was able to finally get and appt for me tomorrow with gi nutrition. Mu blood levels have really fallen. Surgical team is writing up that I do not eat on purpose that I put myself on clear liquids. What surgeon wanted a patient to end up on tpn. Looks bad for them. This place is unreal.

Blood levels were just fine in sept when I got here. With the nyc stoma tho small and closing at the skin llevel only and having some issues I was still apparently able to take in enough nutrients. When I got here I could eat and pass egg and toast yogurt ice cream and candy and juices.

I will check out the sites. Thx. Rosemary

Yes my surgeon used 6 sheets of seprafilm she SAIDB. But nwhere I n the op report was that mentioned. My good stoma for 4 years it said right in the op repoer that the doc that did that one used seprafilm.

This doc when I woke up without my colon unconsentedly removed she chirped "I used seprafilm but that only goes right under the abdominal wall not between bowel loops, makes it easier to reopen you NEXT TIME! I was like oh brother! Seprafilm has the market in the US. Lot to do with what is lucrative on the US front.

Good m$aybe they will give me some. Wondering why they did not a month ago when o requested consult and had the poor blood work.

RJ