Posted 12/27/2012 5:23 PM (GMT 0)
Yes, they are excruciatingly painful and will usually cause blood to come through the opening of the pouch.
I've been getting these since 2000 and even had to have my stoma moved to my left side because the skin around my stoma was so scarred up from the deep ulcers.
If I could figure out how to post a picture here then I could show you exactly what they look like.
At one point, I had seen every WOCN within a 100 mile radius and had even gone to the Wound clinic at Duke Hospital where they ended up having to cauterize a couple of the ulcers.
I'm allergic to latex so some products are out of the question for me to even try.
I've been informed, a couple of times, that they can't move my stoma again because there would be no place to put it and they can't build me an internal bladder (j pouch) because of the Interstitial Cystitis (IC). My next option, they say, would be to bring both ureters up to the surface of my skin, suture in place and then I would have to cath myself throughout the day to empty my kidneys. Problem with that is that your kidneys do not last long and I would be on dialysis fairly quickly. So, I need to figure out how/what to do to get this current location to last as long as possible.