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Still in the hospital...

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Posted 12/31/2012 2:49 PM (GMT 0)
Would a blow dryer on low cool help at all? Many recommend a bidet set up attached to your home toilet that may be something that will be a help for the future?

Glad things are getting a bit better overall but will be happier to hear you are home and doing much better.
Posted 12/31/2012 4:31 PM (GMT 0)
The cream they gave me is actually working just fine for the typical butt burn... the skin around my anus is a-okay. The burning I was describing is actually inside my anal canal where the cream doesn't reach. I thought maybe it was a hemmie or something starting to form, so I decided to stop pushing as much as I could. I know I've heard on here I'm not really supposed to be pushing much anyway. It's difficult to resist, but it seems to be helping... No more intense burning sensation inside when I go. I just seem to go a little more frequently maybe and in smaller amounts since without the pushing I don't get quite as much out when I do go... half the time I sit down on the toilet though it's to pee, not poop (the IV fluids plus full diet is making me pee up a storm - hoping to get off the IV today), and I just figure I might as well empty whatever's in the pouch while I'm at it, which is usually not much. It's a learning curve - new equipment doesn't feel or work the same, so figuring it out. I'll get the hang of it soon enough.

I do have a lovely top model COCO bidet waiting for me at home - I'm sure we'll become quick friends.

Happy to report though, that now that I have started eating and it's actual stool coming out (instead of nasty digestive fluids), I have no leaks whatsoever and am still able to fart no problem without any worries of leaks. (Of course I got pretty skilled at that "game" with my 17 years of ulcerative colitis.)

Right now just waiting until the holiday is over so the IR team can take out these drains in my sides. (Or the left one may just need to be repositioned again - won't know until they get in there with the X-ray.) Kind of at a stand-still for a few days, but at least I'm doing better and eating a full diet just fine.
Posted 12/31/2012 8:45 PM (GMT 0)
Dearest Sweet Friend!!

Happy New Year's Eve!

You have truly been through the ringer...Many happy new year blessings for you and yours!!

So very proud of you and your trooper spirit...I have it too, and it really does work!! So much of this is our attitude.

Just know ALL of us are here cheering for you!!

Much love,
Mollie
Posted 1/1/2013 4:37 AM (GMT 0)
I'm happy to hear that you're doing much better!!
Posted 1/3/2013 8:23 PM (GMT 0)
UPDATE:

I finally got detached from the IV cart this morning. Woo-hoo! They stopped the antibiotics and want to make sure my white blood count stays stable for 24-hours before they send me off, so I might be going home tomorrow! (No promises.) I just hope they are able/willing to take the drain out of my side before they discharge me - really don't want to go home with it in.

Other than that, I am doing great. I have been eating full meals of solid food and digesting everything well. After a couple of days of adjustment, the j-pouch is functioning perfectly: no leaking, no urgency, no pain, total control, and able to pass gas whenever I please. Just can't wait to get home and sleep in my own bed!
Posted 1/3/2013 9:13 PM (GMT 0)
happy to hear things are progressing so well...hope the drain is able to come out soon and you are not sent home with it...I'd prefer not dealing with that for sure
Posted 1/5/2013 2:08 AM (GMT 0)
After twenty-four days in the hospital, I will finally be going home tomorrow morning!! WOO-HOO! I can't wait.
Posted 1/5/2013 3:01 AM (GMT 0)
Oh my gosh. 24 days!!! You are a trooper! Enjoy the long awaited celebrations!
Posted 1/5/2013 9:14 AM (GMT 0)
YAHOOOOO!!!! So happy for you! Happy healing at home!

K
Posted 1/5/2013 11:24 AM (GMT 0)
Yayyy boot!!
Posted 1/5/2013 1:38 PM (GMT 0)
Wow 24 days is a long time....so happy you are going home!
Posted 1/6/2013 7:47 AM (GMT 0)
Finally home and resting in my own bed. Already loving the bidet!
Posted 1/6/2013 2:03 PM (GMT 0)
Hoorah!! what an ordeal. Put me off ever considering a reversal.. ;-)

Hope all goes well from now on.. big healing hugs coming your way x
Posted 1/10/2013 10:35 AM (GMT 0)
Hey Bootstrap....how are you doing? Hope you are enjoying being home!!
Posted 1/11/2013 3:05 AM (GMT 0)
I just checked Boot's blog and I noticed the picture where she eats McDonalds.

Boot, Jebus, you just had the reversal and you're eating arguably one of the worst fast food around. lol

McDonalds, Harveys, Burger King, etc, should be avoided for quite a while. I haven't been to them in years.
Posted 1/11/2013 3:51 AM (GMT 0)
Boots,
Congratulations on your recovery at home! My first stay in the hospital was 24 days too. It was so wonderful to sleep in my own bed surrounded by my four bouncy kids and furry Siberians. I was on a morphine pump so there was no pain just total happiness. I hope you are having as much fun as I did!
Szm
Posted 1/11/2013 1:40 PM (GMT 0)
Somedude... I've been eating fast food, mcdonalds, pizza, last night we made nachos. I have been eating everything including skins on veggies etc. My takedown / reversal was 1 month ago and I've had no issues whatsoever.
I see no reason that boot can't hit up mcD's if it works for her.
Works for me.
Glad your home boot!!!
Posted 1/11/2013 2:03 PM (GMT 0)

kazygirl said...
Somedude... I've been eating fast food, mcdonalds, pizza, last night we made nachos. I have been eating everything including skins on veggies etc. My takedown / reversal was 1 month ago and I've had no issues whatsoever.

Lying on my side trying to retain an enema and reading this made me want to schedule my surgery right ****ing now... so glad to hear you're doing so well :-)
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