Posted 4/1/2013 3:17 PM (GMT 0)
I was completely knocked on my butt after surgery, and I could not manage on my own for a long time. I don't know if it was because I was very sick going in, and was extremely weak and hardly able to go longer than an hour without a nap, or if it had more to do with the fact that I had everything taken out at once (complete proctocolectomy with permanent ileostomy), or a combination of the two. It could also have something to do with being on a very high dose of Imuran for a long time, a drug that always totally wiped me out even when I had been in remission. I do have three little kids though, and there was no way I could have managed them on my own. I'll never forget the day I was leaving the hospital (finally), and I hadn't seen my kids in over a week due to risk of infection and being in step down. My kids and husband came to pick me up and my kids ran at me for hugs. I missed them so much, but I was so weak and exhausted. I remember looking at the nurse and asking, "How am I going to manage to do this?" Her reply to me: "You're going to have to take it one day at a time."
That's the best advice I had been offered, because really, everyone is different, and we all walked very different roads in terms of how we recovered, how we felt during the process, etc. If I could have willed an easier recovery I would have, but my body had its own agenda. You may need people on standby in the event there is an issue. If it isn't going to come as a hard financial hit, I say, let your wife take some time off and tend to you. You may need her for emotional support, if nothing else. You have the rest of your life to enjoy, and enjoy you probably will. Use your recovery to take care of yourself the right way. There is nothing wrong with needing people and accepting help. This was something I had to learn because I had no choice.