j pouch failed before I even got to use it

I'm sorry Sara:( Try to stay positive. Maybe your body just needs some more time to heal.

The hole where I had a drained placed when I had my abcess is growing larger instead of healing on it's own. There is no sign of crohns. My surgeon is baffled on why I am such a poor healer. It is frustrating having to keep putting my life on hold. I can't hold a job or start planning my wedding. I know pouch reconstruction is major surgery and if that doesn't work out then I'll make the stoma permanent which is another major surgery.

I am so sorry to hear it Sara. I hope they figure out a solution soon. Sending healing vibes.

I was on steroids during step 1. I have been off of them since March 2012. The drain was put back in a week ago because there was puss where the original abscess was at. There is technically nothing wrong with the pouch, it just won't heal. Everyone seems to be stumped as to why a young person like myself doesn't heal.

I understand completely ...I spent one month in hospital and three operations later, tpn, renal failure, pneumonia the works...they went to form the pouch and it turns out there isn't enough bowel, if they were to move things about to make more it might kill me ...so I wake up after my first surgery to be told I now have a permanent ilestomy ....that was 9 months ago. I have good days and not so good days ..I try to focus on the fact that I get another chance at life, and that usually gets me through ....I sincerely hope things work out for you...

Sara,
you're a slow healer, so it's going to take longer. The entire process is an ordeal when it goes fast and easy, so I can imagine how it looks for you. But you are going to get there. Your pouch will heal, it's just taking more time. I really hope they figure out why you're healing so slowly long enough after the pred is out of your system.

Yea my hubby's hole took about 6 months to heal ... his doctor did a procedure on the hole though at one point. He went in for a pouch scope and the surgeon did a "scraping" of the hole. Basically he took some sort of tool and just scraped the wound and cleaned it out and tried to "stimulate" the area. He said that sometimes this help bring more blood flow to the area to encourage the hole to close faster.

Also, he said if the hole didn't heal about 3-4 months after he did that, then it means that the area where the hole is cannot get any blood flow. He said he had a few instances where a person's jpouch just wouldn't heal and they had to do another procedure where they had to turn the hole inside out and then manually seal it up.

Luckily, after we had this scraping thing done... he had another scope about 4 months later and it was all nice and healed up. :)

Maybe you could have them do this for you too? But I agree with the others, this can take a long time to heal. Hubby's doctor told him that even though he had been off steroids for awhile before his surgery it can still affect how your body heals depending on how much steroid use you had.

Also, with the abscesses, those things are brutal and can also take a long time to heal. I've heard of people being on antibiotics for a very long time. I had to give my hubby Invanz through his PICC line for weeks and weeks after I brought him home. He also had the drains and they actually had to go up inside him a few times and flush out the abscesses.

Chin up! :D

Post Edited (Amythyst) : 5/29/2013 4:38:07 PM (GMT-6)

I was discharged yesterday after 19 days in the hospital. I can't get over how BIG my new stoma is. I know it's swollen, but I'm used to my little guy that was less than an inch. I have to move up to the bigger wafers. This my 6th time being opened up and it never gets easier. I feel like I got hit by a bus.

It is good to see there are others that had the same situation. I've seen so many members on here go through the whole 3 step process so quickly and it gets discouraging sometimes. I want nothing more than to start working as a nurse and plan my wedding.

Sara, so sorry that you've had this set back and things are healing so slowly. I hope someone can figure out more about what's going on. Hang in. It is discouraging that so many others have their healing go more quickly, but as others have posted, many of us do get better, even if it takes longer.

Hope you can get some rest and enjoy being out of the hospital.

Was home for four days. Back at CC. My abscess is back. Now I get to spend my summer with this awful tube up my butt. I just got this thing out in March.

Hi Sara, I just wanted to bump your thread and say I'm thinking about you and hope you are feeling a little better. It takes a strong person to get through this, especially in your case. I can tell by your posts that you have an awesome attitude and you will have your Jpouch soon enough. Keep your head up...

The bad times would really suck if they didn't make the good times so special.

Post Edited (Mossmi33) : 6/12/2013 2:52:15 PM (GMT-6)

"Thanks for thinking of me. I got discharged with my drain on Friday. On Sunday I started to feel ill. I couldn't hold food down. I went to a local hospital and they didn't find anything wrong except maybe a reaction to my antibiotic.

I'm currently very weak and very underweight. Every time I start eating again it seems like something new happens preventing me from eating. I can stand up just long enough to shower. I want nothing more than to feel well again. It has been one thing after another since my pouch was created six months ago. I can't believe I got two abscesses within months of each other.

It is getting hard to stay strong. I am going to the doctor Tuesday to maybe see if I can get started on something for anxiety."

Like all facking things in life. You are healthy no issues, you get UC, the world is upside down. You have surgery to fix your problem, other problems arises. You spend a lot of time chasing an elusive "well being".

I think people that end up having surgery and have 0 issues, those hit the jackpot because it seems something always WANTS to wrong.