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Food advice with my new ileostomy

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Posted 8/26/2013 11:41 AM (GMT 0)
G'day guys I suffered with ulcerative colitis for 13 years and 6 weeks ago got step 1 of a 2 step j pouch surgery

There was a few hiccups but I'm doing okay now

I currently have a loop ileostomy and wanted some advice on foods I can eat

I'm wanting to go out to dinner with my girlfriend and really feel like have BBQ pork ribs but I don't know if they're safe

Currently my diet consists of : toasted cheese and ham sandwiches, grilled chicken, some chips, pasta, lasagne, schnitzels ( I'm trying to put on weight lol)

Thanks for any advice
Posted 8/26/2013 12:33 PM (GMT 0)
I ate everything with my ileo (and still do with my j pouch). I never had a problem. You should be fine eating BBQ ribs...sounds yummy! The only thing I did was make sure I chewed my food really well post surgery. Now I don't even give it a second thought. Enjoy!
Posted 8/26/2013 10:40 PM (GMT 0)
At 6 weeks out you should have no problem introducing new foods into your diet and getting to the point of eating pretty much everything. Ribs should certainly not be a problem. I second the advice to chew very well, and if something seems particularly tough, just spit it out or only eat a little bit of it to start, and see how it goes. Enjoy being able to enjoy food again!!
Posted 8/26/2013 10:45 PM (GMT 0)
Totally agree with UCW. I guess my only caution would be to take it easy on any sugary BBQ sauces and to add some starch to your meal to slow things down (like a biscuit, noodles, potatoes, etc). Enjoy!
Posted 8/27/2013 2:47 AM (GMT 0)
I have no problem with bbq, I'm from the south it's a staple,lol. It does give me gas sometimes and also watery output. So keep that in mind. Like pluot said add something thickening to your meal, and maybe take a gasx before hand.
Posted 8/27/2013 11:41 AM (GMT 0)
thanks for the advice guys, im gonna try some bbq ribs tomorrow night i think, aslong as i chew well they should be fine and there isnt that much meat on them anyway.

one thing i wanted to know about is cheese? how safe is it? mostly melted soft cheeses like mozeralla somtimes chicken parmigiana and foods like that have quite abit of it and im scared of a blockage..

thanks, anthony
Posted 8/27/2013 12:41 PM (GMT 0)
I eat cheese all the time, mostly mature cheddar. I find cheese a strange one as most of the time I am fine with it BUT occasionally I can have it and it makes my output quicker for around 30 mins and can make me feel really sick. Once it's gone stright through I fell fine again though so I just accept occasionally I'll feel a bit crap but as I say, its not that often so I don't mind. The only thing I struggle with is alcohol and oranges. I just don't drink alcohol at all anymore though.
Posted 8/27/2013 2:20 PM (GMT 0)
You should be fine with cheese too.
Posted 8/27/2013 2:32 PM (GMT 0)
No troubles with cheese of any kind for me either. Just keep in mind that everyone is different. If you are try something new, try not to have TOO much at once....if all goes well, have more!!
Posted 8/27/2013 2:49 PM (GMT 0)
Yes, definitely CHEW throughly. You might go easy on spices for awhile it's funny what can come out the "other end". I had a partial blockage from a mushroom, of all things, so now I chew or cut things up. Also watch for seeds with pointed ends. Cheese had been fine for me, hope you can enjoy eating out-if you try a new food keep track of how your system reacts, see if it agrees with you.------
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Posted 8/30/2013 7:36 PM (GMT 0)
I have only just joined the forum and now do not feel so isolated. I have had my ileostomy for six months after having ulcerative colitis for 32yrs, having the odd remission. I was very silly and decided that nothing else could be done for me so gave up seeing any medical specialists. I developed bowel cancer because of my own stupidity and neglect. My stay in hospital was nine weeks instead of a week due to complications with an abcess. I ended up having a second surgery and a central line put in to feed me. It has given me great comfort to hear other peoples stories and know that I am not alone. I have already followed advice given on the forum and found a very comfortable and more reliable pouch as I have been having issues with adhesion and leakage.

Regards Jackie from Wiltshire, U.K.
Posted 8/31/2013 1:05 PM (GMT 0)
I eat everything except popcorn and corn, just chew lots ....good luck
Posted 8/31/2013 2:26 PM (GMT 0)

BobMan64 said...
Yes, definitely CHEW throughly. You might go easy on spices for awhile it's funny what can come out the "other end". I had a partial blockage from a mushroom, of all things, so now I chew or cut things up. Also watch for seeds with pointed ends. Cheese had been fine for me, hope you can enjoy eating out-if you try a new food keep track of how your system reacts, see if it agrees with you.------
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The only two foods that my surgeon advised me to stay away from were mushrooms and sweetcorn.

A few weeks ago I had some mushrooms as part of an open steak sandwich, thinking it would be okay. And... it wasn't. I've had full obstructions with Crohn's and they're excruciating. This wasn't like that, but it did resemble a mild partial obstruction.

I won't eat mushrooms then. Or sweetcorn (but baby corn seems to be fine). Eat literally everything else and don't chew any more thoroughly than I did pre-ostomy.
Posted 8/31/2013 2:39 PM (GMT 0)
I say everything, only leave out vegetables that have long stringy fiber, like celery and asparaghus. Aside from that, just enjoy yourself.
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