Posted 7/4/2014 5:58 PM (GMT 0)
Just joined the group, seeking lots of firsthand and factual information for my own decision to have a K Pouch or BCIR. Sunstarmom was the first post I've come across with very negative experiences with BCIR and I'm very thankful to read this. Sometimes I wonder if I'm not hearing "Ads" or "Pitches" from BCIR representatives, disguising themselves as recipients! I suppose a good does of caution is necessary, but I would like to try NOT wearing an outer appliance after having one for 42 years, since I was 8. But when I read about people with K Pouch and BCIR having to have several surgeries to "fix" problems, I can't help but wonder how I'd deal with it. I mean, are they minor surgical procedures after The BIG ONE? I'm using a patient referral list from BCIR hospital in Florida and been searching onlne for about a month now. So finding this post has been very helpful. We all hope we are on the good side of the statistics and risks. I'm so sorry for her outcome and I really would like to know how she is doing now.