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jpouch creation 2 of 3 ops

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Posted 9/18/2014 4:19 AM (GMT 0)
Hi Guys
I am new here, i use to post on UC ages ago
In december 2013 i had emergancy total coloectomy and temp ileo
July of this year i had my second op , which was creating the jpouch

I have a few questions/concerns

1. i get rectal type spasams, is that normal?

2. first 2 weeks after the op, i would leak at night time through my rectum and i didnt feel it.
i would wake up with mucus. This has now stopped but im concerned when im connected im going to have leaking problems

3.it been about 11 weeks since Op and still can not do much ...when i had my first OP ,after 2 weeks i was out working and cleaning etc but this time i can not do anything still because i feel like my insides are killing me and if this is normal after 11 weeks?

4. poop comes out of my rectum and i have a sensation that i need to poop but i hold it.. is that Normal?

5. i was cut open and was cut above my belly button because i had adheasions the surgeon removed and i feel like i cant stand up totally straight because it feels like my whole tummy pulls were my cut is.

i have spoken to other people on the gi monitor Ap and they seems to have recovered very quickly

sorry for my long questions...im starting to regret that im doing the jpouch and should of just stuck with a perm ileo
Posted 9/18/2014 11:01 AM (GMT 0)
Hello and welcome!

Well I had my step two at the end of July and had my take down almost 2 weeks ago.

I'll say this about step two, sorenes and rectal pain last quite a long time. 11 weeks seems way to long however. 3-6 weeks is kindof the norm. But I also wasn't cut open and didn't have adhesions scraped after step two. Step 3 I had some and yes that was very sore but that soreness is already gone. It's very important you are up and walking to try and loosen the muscles and keep your system active.

As far as holding in your stool post op, I wouldn't be too concerned with that now. The difference is now it should be mucous which is a lot tougher to hold than stool. Not saying you definitely won't have issues but whatever is going on now isn't a precursor to what will happen post takedown. Same thing with rectal spasms.

Now actual poop coming from your rectum does not seem normal. Mucous or even a "thicker" mucous I had but not actual poop. The urge to poop is normal, with the mucous and spasms. Again actual poop does not seem normal.

I'm 2 weeks post takedown and during my step two and some days post take down I regret it too. It's hard and a long healing process but in the long run it'll be worth (for me at least). Just hang in there you still have some tough days ahead of you but you also have an even longer and healthier life to look forward to. Remember the absolute worst case is that you have another surgery and go back to an end ileo, that surgery might be really hard but having an end ileo isn't all that bad.

What has your surgeon said about all of this? 11 weeks does seem like an awfully long time to still be feeling like this.
Posted 9/18/2014 11:22 AM (GMT 0)
When i raise my concerns with my surgeon , he just thinks that because i have Fybro that i will be extra sore and longer to heal.

I havent told my surgeon about the poop because i asked others on another forum and some people said they have had poop come out.. but maybe i should ask..my only issue is each time i see my surgeon it cost me $150 bucks..so i dont wanna spend that kind of money to just ask him a question
Posted 9/18/2014 11:28 AM (GMT 0)
When is your takedown scheduled? Or what's the timeframe?
Posted 9/18/2014 11:44 AM (GMT 0)
i was planning to have my takedown in Nov-Dec 2014
Posted 9/18/2014 12:11 PM (GMT 0)
I would deff talk to your surgeon about these issues. Especially the stool coming out and the incredible soreness you're still having.
Posted 9/19/2014 4:52 AM (GMT 0)
As always, I would raise any concerns you have with your surgeon, just to be safe.

Step two can be brutal for a lot of people. The pain you're describing is pretty common and expected, however you are also just shy of the three month mark which is usually around the time most people say they're really feeling like themselves again. Having fybro, I'm not sure how much more that will affect your healing and pain levels. It also sounds like you had a fully open operation? I may be mistaken, but I think they also take a longer time to heal from and can have more pain issues as well, as opposed to when it's done laparoscopically? Someone please correct me if I'm wrong.

Additionally, it can be tough with the loop ileo to really get the hydration and nutrition your body needs so that could also be playing a role in things.

As rabbit said, the mucous and even the leakage is completely normal and is no indication of any continence issues you may or may not have after takedown. I also had some spasms/tenesmus type feelings before takedown.

Finally, the stool can be completely normal as well. The loop ileo is basically like a garden hose folded in half with a slit cut at the rounded end. Sometimes waste can bypass the stoma site and continue down. However, not knowing the frequency and amount of stool you're passing I would again say bring it up to your surgeon just to be on the safe side.
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