HealingWell
Search Close Search
☰

Just had stage 2, of 3 stage j pouch surgery. Few questions could anyone help with?

Support Forums
>
Ostomies
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/30/2014 11:05 PM (GMT 0)
Hey all,
Wondered if anyone could help
Had stage 1 - colon removed late last year.
Had stage 2 - this was done 3 weeks ago, where they form the j pouch but still keep the loop ilesotomy stoma.

One thing I've been finding is a decent amount of pain around my lower pouch/rectum. I didn't expect anything to come out my bottom end or through the J pouch. I thought it would all come through the bag. However brown/red cloudy stuff is coming out my bottom end around 8 times a day. And each time I feel it's sore and aggravating it.

Apparently it's that some waste bypasses the stoma and comes out through the pouch. Is this normal? It's sore, and I didn't think was meant to be working till stage 3.

Other news is I've got a 1cm hole at the bottom of the pouch. They say this should heal over on it's own. If not they would have to stitch it but it could be a weak area. Has anyone else had a hold that healed over?
It's a must if I want the stage 3 reversal, which I do soo badly.

Any help or comments at all would be appreciated!

Many thanks

Chris
Posted 10/1/2014 12:37 AM (GMT 0)
With a loop ileostomy, sometimes stool bypasses the loop and comes thru the pouch and out your bottom and that's totally normal. Some people have a little, some have a lot come out. No need to worry about that. You'll pass mucus too. Use some zinc oxide ointment if you feel irritated down there.

I'm sorry I can't help with the hole situation. I've heard this happens and it does heal. I had a fistula after my step two that needed to completely heal up before takedown and it did. Good luck!
Posted 10/1/2014 9:49 AM (GMT 0)
Thanks!

Would the zinc ointment be a cream at the bottom end?
It feels like the ache and pain I'm getting is 2-3 inches inside. Where the pouch is. I think it's just inflamed and sore.
Maybe even at this stage I could have pouchitis or cuffitis?
I took loads loads of antibiotics in hospital and that always triggers off flares or inflammation for me

Many thanks

Chris
Posted 10/1/2014 3:22 PM (GMT 0)
It's healing pain. Remember, you might have an incision in front, but the pouch was stapled (or stitched) to the rectal cuff, which is exactly where you're describing the pain. I had aching and pain in that area for probably a solid six weeks after step 2, and it was definitely worse on days when I was more active. It eventually tapered off.

A hole in the pouch is common, that's why everyone gets a pouchogram before takedown. They almost always heal on their own.

Good luck!
Posted 10/1/2014 7:08 PM (GMT 0)
Liz,

Thank you so much! That honestly made my day and put a massive smile on my face!
Hope your pouch is working out well for you!
Chris x
Posted 10/1/2014 10:29 PM (GMT 0)
Chris, I just wanted to wish you speedy and successful healing. And, isn't it great that Marianne and Liz and others who have walked this path before us share their wisdom!
Posted 10/2/2014 5:47 PM (GMT 0)
It's fantastic.
Extremely grateful to be getting great advice from people who've been there!
It's a great forum indeed!

Chris
✚ New Topic ✚ Reply