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Posted 11/1/2014 4:10 AM (GMT 0)
Hi, my husband was opened up and closed as the tumour was embedded in the sacrum. So I suppose nothing was removed, colectomy not done, rectum is in tact Now it is 10 months since the op. He still tends to pass some smelling stuff from the rectum and also does get the external piles off and on. Ileostomy was done and I find it very difficult to cut the wafer as the stoma is out of shape. Any advise anyone? Thanks Mary Anne
Posted 11/2/2014 6:40 AM (GMT 0)
Hi Mary Anne

Im not really sure what you are asking?
Maybe you could rephrase your questions?

Hope we can help!
Posted 11/2/2014 9:05 AM (GMT 0)
HI,1) Is it ok for the wafer to rest on the part of the intestine. My husband's ileostomy is is looped and not a perfect round so it is very difficult to cut the wafer properly. Some part of the paste area rests on the red slimy part of the ostomy and tends to leak due to the slime.
2) My husband's colon and rectum was NOT removed. Only the ileostomy done because the tumour could not be removed as it had embedded into the sacrum. Is it normal for him to still pass some stuff from the anus and he still gets something like hemorrhoids (external pimples) on the anus. Is that normal too?
Thanks everyone Mary Anne
Posted 11/2/2014 4:14 PM (GMT 0)
Hi mary anne am new to this site and i live in the uk. I get my stoma flanges pre-cut at the place where i receive all my stoma bags and other items which i need to take care of my stoma. My stoma is a oval shape. I found it difficult too to get the right shape, so in stepped my stoma nurse david, he is just great at his job and puts people at ease.He cut the right shape and posted my template to the factory which supplys the stoma bags and when i need my next supply its all done for me and comes within a week. wink I have colitis and decided enough was enough of all the meds they want you to try !!!!. which are all just quick fixes.So i chose to remove my colon and get an ileostomy intending to get it reversed in the near future. But after a terrible 16 day stay in a hospital due to an infection and then my rectum which was still intacked flared up with colitis !!!.So i was back to square 1 after going through major surgery to still have the dreaded colitis.So now 10 wks down the line and still battling with colitis i am waiting for emergency surgery on the 20th of this mth. to have the rectum removed and my butt sewn up !!! smhair.Not a very nice surgery but its the only thing to get rid of this dreaded disease, and i have chosen to not go through with the reversal as too many other complications and issues. So i am happy to keep my stoma and be done with it all.I hope your husband gets the help he needs in sorting this issue out, and i wish him all the best in the near future.regards lynne.
Posted 11/2/2014 4:38 PM (GMT 0)
Hi Mary Anne, first I would discuss this with the manufacturer of who's products you are using. They are all very helpful and have heard of just about every situation. I would suggest you could go the a pre-cut wafer large enough to fit the widest part of his stoma then use an "eakon seal" or "barrier ring" (same thing just different manufacturers). They are easily shaped to fit, and block any space left by the irregular shape of his stoma.
Good luck
Posted 11/2/2014 8:37 PM (GMT 0)
Can he use moldable wafers? You don't cut them but just mold to the shape you need. Sounds like that could help.

It is normal to still pass stuff from the anus -- there are fluids produced there that have to come out. I don't know about the pimples, but I would think that's normal too -- but maybe check w/your surgeon or nurse to be sure.
Posted 11/4/2014 11:26 AM (GMT 0)
Thank you to all of you. Great responses. Did not know about the mouldable wafers and also that I could get the wafers pre cut. Thanks a lot and may God bless you and yours for taking the trouble to sort this matter out for us both. regards Mary Anne
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