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reversal surgery

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Posted 5/29/2016 11:44 PM (GMT 0)
I'm coming up on my two week anniversary since my reversal. When I was in the hospital I was doing ok. No real pain considering. I was released 4 days later. (to my surprise) Anyways while I was home I was doing ok. I was eating, going to the bathroom going for walks around my neighborhood and taking things slow. I started going out. I did some shopping etc and things were going great. But the past few days things have not gone so well. I'm constantly having the urge to go. Its almost as I feel like its oozing out of me making me run to the can. And because of that I'm having severe diaper rash. So much so that the other night I took an Oxy. I've tried everything from wet toilet paper to baby wipes, and applying loads of desitin cream. Nothing seems to work because as soon as the destine cream starts to work I feel the urge to go again.

Anyone have any suggestions. Is this feeling of oozing normal? I'm scared to leave the house?

Thanks!
Posted 5/30/2016 1:36 AM (GMT 0)
Hi puckhead. I had a temporary ileostomy for about 2-1/2 months back in 2010, the result of a volvulous. Fortunately, I was able to get reconnected and things today (at least dealing with my intestines) are fine. Like you, I initially had a lot of urge to go. In fact, while I was still in the hospital, the day that my bowels woke up, they WOKE UP. I think I had 20 bowel movements in the first ten hours. My surgeon initially didn't want to give me anything to control the movements, as she felt it was important for them to get rid of whatever was in there that was causing the urgency. It wasn't until the nurses told her at about 6 in the evening (after the movements started around 6 in the morning) that she finally took some pity on me and had the nurses give me something.

So I think the urgency is kind of normal, but it does go away in time. I know that's little solace to your butt, but hang in there. Hopefully someone else has had a similar situation and can advise you on something you can do for your skin.
Posted 5/30/2016 2:54 AM (GMT 0)
Do you have a jpouch? For me, when I initially reconnected, I had a tough time. I would go to the bathroom anytime i had any sort of urge. I also had a tough time knowing what was gas and what was BM. It got much easier for me over time. I am not sure if you've had the same procedure, but I've always had a lot of burning. Up until recently anyway... Mine was actually from yeast. I was able to get a cream that helped very quickly. You have to remember, without a colon, the PH of the output is different, and your tissue on the butt region is not used to those contents. It should improve over time, but if you're keeping it all moist back there and using wet wipes, you can also brew the perfect storm for yeast. If it's uncomfortable, go to the doctor and make sure it's not something that requires a prescription.
Posted 5/30/2016 11:41 AM (GMT 0)
I had my J Pouch connected just over 3 months ago and sill adjusting (and improving) each week. Instead of Desitin cream, try Calmoseptine. It has a higher zinc oxide amount plus adds menthol to soothe the skin. Also check out ILEX, it's a pretty good barrier cream that's pretty much waterproof. I had butt burn episodes that made me cry at times. Now they are almost non existent. Also look for a hand held Bidet (amazon $12). You can use that to rinse off and help reduce all the wiping that will irritate the skin. My surgeon gave me a prescription called Questran, it helps reduce the stomach acid so it's not as irritating coming out until your skin adjusts. Also look into VSL3, I have a prescription for the double strength, it's a probiotic
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