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Posted 2/5/2017 3:14 AM (GMT 0)
Anyone have issues with an anal stricture BEFORE getting reversed? I'm almost 5 months post j-pouch creation and need to see my dr weekly for in office dilation because the darn thing won't stay open! Also, I've already had 2 balloon dilations that completely failed. At this point, he is recommending I self-dilate daily to see if it helps. I can't get reversed until it stays open on it's own sad I don't mind waiting but I'm concerned that strictures will continue to be a problem even when I am able to have my reversal. Has anyone had a similar experience that can offer advice? I'm a very optimistic person but this process is really starting to get me down. Thanks <3
Posted 2/5/2017 12:32 PM (GMT 0)
Ugh strictures are a pain....sorry. I had a stubborn one but after my takedown. I had to go for a dilation about 6 times before it finally stayed open. Yours sounds extremely stubborn. The self dilation is a good idea. I think some people's body's are more prone to developing scar tissue than others. I hope you get this resolved soon. Good luck.

PS - I'm in NJ too!
Posted 2/5/2017 4:01 PM (GMT 0)
Hi Marianne!

Where are you in NJ? Where did you have your surgeries? I'm in Rockaway and have been seeing Dr. Sonoda at New York Presbyterian.

Did you have your dilations under sedation? How far apart were your procedures?
Posted 2/5/2017 7:18 PM (GMT 0)
I'm in central NJ .... about 30 minutes north of Trenton.

I had my surgeries in Philadelphia @ Jefferson University Hospital 6.5 years ago.

I did not have them under sedation (although I should have for the first one at least....ouch.) I went every two weeks to my surgeons office and he did it in office. Then I went once a month after those first few until it stopped forming. Luckily, I haven't had an issue with that since then.
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