rectal bleeding everyday!

I had a permanent ileostomy in 2013. First I had the phantom butt, then the butt started producing both hard and soft mucus. Last year pinkish blood would come out progressing to dark red with clotting.

One morning woke up in pool of blood. Went to ER got sulfates, while resting a week later while still bleeding I developed leg clots from my ankle to my hip. Back to hospital, got a filter put in then had to wait there a week for the GI and Hematologist to decide what to do. Went on Warfarin for several months.

Now I have rectal bleeding every day, some days very heavy deep with clotting. I find out that my GI basically lied by telling me the the surgery would cure my symptoms. Heck he mislead me about a lot of things. I have learned that the rectum is the first place to be attacked by the disease after ostomies, this seems to be common knowledge on this site anyway. Why did the surgeon leave the rectum????

I am just really depressed now....its hard enough to go to work everyday with the bag, pain from fibromyalgia, PTSD, and total exhaustion....I really don't think I can go back on an immune suppressant, last time I literally lost my mind, total hiving throughout body, couldn't form sentences, couldn't form thoughts, dizzy, lost way too much weight.

Well then why not have your rectum removed?? After the rectum is removed and your butt is sewn up (barbie butt) you should be fine! Everyone with a permanent ostomy eventually needs their rectum removed so I am baffled why your doctors allow you to bleed instead of performing the surgery?!