hi,
hang on in there, in July I was told I had less than a month to live, and a less than 4% chance of survival, I was riddled with Crohns, fistulating and abcessing constantly,all the standard and experimental treatments failed, I lost my sight 5 times with uvietus, but thankfully got it back, my right kidney only works at 29%, and I had horrendous mouth ulcers all caused by crohns ,for the last 3 and a half years my life was constant surgery, the last year and a half I was bed ridden and incontinent with blood coming through the fistulas up to 30 times an hour. I'm 53 never drank smoked or done drugs, but have had this disease since I was 13, but not diagnosed till I was 38. Against the odds I'm still here so keep fighting, my illieostomy is irreversable, and my back passage has been removed, 6 months on it still hasn't healed and is packed and dressed every day by the nurses. I had to spend most of December in hospital due to a blocked bile duct and acute pancreatitus which caused my organs to start failing, I have now been told I need to have my gallbladder removed by open surgery as it is diseased and the pancreatitus could re occur at any time. Having faced death 3 times in the last year and lost 6 stones 4lbs, for the first time I am frightened as I am still very weak and tire easily. My stoma also keeps leaking and a swelling has come up beneath it, which I will call the stoma nurses about tommorow. Have faith in yourself I know your feeling low, but you have come so far and you will make it. Has anyone else out there had the same as me and developed gall bladder problems after surgery, I have never ate a fatty diet due to the crohns, some advice would be welcome,every time a bag leaks i feel so bad about myself and am frustrated my healing is so slow I only had a score of 11, apparently the lowest operated on was an 18, he was healthier than me but died on the table, I was on tpn for months, so someone must be looking out for me, I feel blessed to be alive, but just can't face this next surgery I want it to end and be well again, I focus my limited energies on raising funds for our local colo rectal unit, this way I feel I'm giving something back and doing something positive, my energy only lasts about 2 hours, and the pain sets in if I try to be normal and walk round the supermarket, I just can't do it, I know I was riddled with the disease sand sepsis, and the other problem and open wound are not helping, but the frustration of not being able to beat this is driving me nuts, any answers will be greatly appreciated, I am a very positive person, but finally my patience is wearing thin