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Posted 4/23/2009 8:40 PM (GMT 0)
 

  yeah Hi Getting By;

      

           Well,all is done and over and all is left is the pain.I finally had my rectum removed on the 30th of last month.

           I do feel better knowing that there will be no more drainage,to be embarrassed about when I am out.

           For all of you that have had it done,know how painful it is.I was in the hospital for seven days.I must say that it was not a pleasant stay.I could not wait until I got home.I have been home for about three weeks now,and am starting to feel a little bit better every day,but I still have the same infection that I had when I left the hospital.The day after I got home,I had to go by ambalance to the nearest hospital the day after I got home.I had a major rush of blood from my rectum.I never was told what caused it,but the doctors at the hospital did manage to get it under control.I am still bleeding some.Then about three days later,I started bleeding from my staples.It was  non stop for about an hour.My husband kept putting cold paper towels on my incession.

            I went last Thursday to have me staples removed and  pressure removed from my rectum.I am getting around a lot better,but I know that I have a long road of recovery a head of me.Until I had my staples out,I was basicly confined to my bed.It seems like now,all I do is sleep in my bed at night and during the day,I spend most of the day on the couch watching T.V.

            I am still having a lot of yellowish mucus drainage from my incession,and have been on two doses of Cipro,which have not help.I go back to the doctor on the 8th of next month.I don't know why,but I am still having some drainage from my vagina.I will ask about that when I go back to see the doctor.

            It is hard for me to sit for any length of time,and that time is up.So I am going to go back and lay on the couch for a while to give my butt a rest.

            That is all for this time,I will write more next time.Take care and thank you for reading this.

                                                                                                        San's nono   

Posted 4/24/2009 3:40 PM (GMT 0)

I can understand your pain, as I had similar infection. I used to have lot of pus from my incision site. It took some time for it to heal. Have you got the pus checked for culture. Did you get your blood test for TLC count. There may be severe infection, which is delaying your healing.

What I understand from your post is that now you have a J pouch. Are you talking about the staples on the incision, or the one used on the J pouch.

My prayers are with you. You will be fine very soon. Take Care. Keep us posted.

Posted 4/24/2009 8:58 PM (GMT 0)
 

:-)  PSD.Delhi,

      Thank you for responding to my e-mail.I have not had any tests or cultures done,since the day after I came home from the hospital and had to go to the hospital nearest me.They did draw blood which did show that I have an infection,and that is when they put me on my first dose of Cipro,then when I went back to have my staples taken out,I was put on another dose of Cipro.I did call the doctor that did my surgery,and he does not want to put me on any more antibotics until he can see what is going on.I don't whether I should go to the Emergercy Room,near me to have the oozing of the yellowish pus that is draining from my incision check out,or just wait it out until I see the surgeon.!!!!

       I feeling a little stronger each day.I did take a nice comfortable pillow and went outside and sat on the front steps today.It felt good just to get outside.

       Another Ostomy friend said something about putting some Sivler Nitrate pads where I had my butt closed off.My husband had some that he did not need anymore,so he put one on for me last night,and what a difference I felt this morning when I woke up.So  my husband put another one this mornng,and will continue to do so until it is healed up and then,if my stomach is not healed by then,we will try it on that.

       I appreciate all of the input I can get on what I am going through.Once again,thank you for reading this.This is a great site and I love hearing from all of you that can help me get through this.

                                                                       Thank you

                                                                           San's

     Love and Prayer to all

Posted 4/25/2009 10:04 AM (GMT 0)
Hi San
Thanks so much for your kind words. Well you must use a soft pillow/cushion, when you sit. It would help. I have to use it because of my fistula, which flares up in case I sit on any hard surface.

Now in so far as Cipro is concerned, why I am suggesting culture test is for the reason that it helps to short list the antibiotics which your body is receptive. There may be resistant, sensitive and moderate sensistive. In my case, out of 20 antibiotics, I can take only two. The others are resistant. So the resistant would not help in reducing the TLC or infection. Take care and keep us posted. Thanks again.
Posted 4/25/2009 5:01 PM (GMT 0)

  :-) PSA Delhi'

          It is always good to hear from someone who has been where I am heading.about how long did it take you to fully recover from your surgery?It has been 28 day for me now,or a month on Monday.In many ways it seemsmuch longer.I have had many of surgeries,but I think this is the worst in every way  possible.

          I am able to sit a little bit more comfortable and a little more longer each day,as long as I am sitting on a comfortable  pillow or seat.I thank the good Lord that I have a comfortable computer chair.That really helps when it comes to being at the computer,answering my e-mails,but as soon as I get up,I go and lay on the couch and give my butt a rest for a while.I try not to sit for to long of a time.I still spend most of my days laying on the couch.Which is starting to get old,but I guess there is nothing that I can not about it,so I might just as well get used to it for a while longer.

          Thinking back,on all of times I have been on cipro,I have had it to be treated for a U.t.I. Not the type of infection I have now,if any.I am having a lot of pains on my right side,and had my appendix out ten years ago,and the surgeon that did the removal of my rectum also scraped off the scar tissues that I had all inside my stomach.I have had several lower intestenal surgeries through my life time.

          My husband does not really trust the hospital nearest me,as they almost killed me once about four years ago.So he does not want me going back there unless it is an emergercy.He would like for my to wait until I go back to see the surgeon about what is going with all of the problems that I am still having.I am not to found of the hospital near me either.I ONLY GO THERE IN CASE OF AN EXTREME EMERGENCY..

          I am counting down until the 8th of next month,so that I can go and see the surgeon and find out just what is going on with me.I never do anything the easy way,It always ends up the hard way with me.

          That is all for now.Thanks for reading and hope to hear from someone soon.

           Take care,       Love and Prayers to all

                                                                                               San's

Posted 4/26/2009 3:42 PM (GMT 0)
San

There is a saying "If you become sick and patient, one thing you should not loose is patience." Have patience, things would settle down soon. It takes a while. After all some parts of your body, which are crucial have been removed and the natural process has been dispensed with.

As you may be aware, intestinal surgeries do take time to heal. My advice to you is use cushion for a couple of days, till your butt becomes strong enough to take on the roughness.
Take Care and keep us posted.
Posted 4/26/2009 5:50 PM (GMT 0)

 PSA.delhi,

     I just received your e-mail and it is good to hear from you as always.

     Today is one of my down days,where I don't feel all that great,but I am trying to make the best of it.I have tried to go out and sit in the sun for about 15 minutes at a time,a couple times a day.I just feel weak and drained today for some reason.I can't help but wonder if a lot of the way I am feeling has a lot to do with the drainage I am still having from my incission in my stomach.I wish I lived closer to a hospital that I trusted,but like I said I don't trust the one up by me as they all most killed about four years ago.The drainage does not seem to be slowing down at all.I am still changing it two to three times a day as needed.The funny part is,only the right side of my stomach hurts me,but more so when I lay down on my right side.I keep telling my husband that I don't know if I can hold out,until we go back up to Pittsburgh,PA.,on the 8th of next month to see the surgeon who did the surgery.That is a four hour drive,from where I live,just one way.

       I am not loosing my patients,I am just getting tired of laying around all of the time.That is not the kind of person that I am.I am used to be on the go all of the time.or at least being active in some  way.When the weather is nice outside,like it was yesterday and is supposed to be for the next three or four days,I like to be out and about.

        I have a nice comfortable trusty bed pillow that goes just about evey where I go,when it come to sitting down.

        Yes,I know that I have lost quite a bit of intestins from all of the surgeries I have had.The colostomy took some of them and I know I just lost more of them with the removel of my rectum.

         My husband is puttling Silver Nitrate Strips on my butt twice a day,which is helping with the pain,but the bleeding is not stopping any.I think if I could get the bleeding from my rectum to stop and the oozing from my incession on my stomach to stop,maybe I would feel some what better.But there is no sign of it letting up.The last  place I want to end up,is back in the hospital with a major infection.

         Well that is all for this time.Thank you everyone for reading this.I hope to hear from  you again. Take care........Love and Prayer to all of you                   San's

Posted 4/27/2009 12:07 AM (GMT 0)
Hi San's --I'm on day 64 without my rectum. It will stop draining--I promise! Just this week, I started using lightdays instead of maxi stay frees. I was wearing 3 maxipads--one in the front and 2 in the back and changing them a few times b/c of the drainage. The wound is packed by my husband 2ce a day. The surgeons left mine open and the wound was over 10cm long and 7 cm deep when we started. If you check back on this forum, I had a lot of issues with the wound too and had looked into a wound vacuum but am glad I waited it out--it's down to 3x2cms. But, it did drain lots of blood and mucus for the longest time and the packing still comes out with bloody drainage. Docs and visiting nurses really pushed high levels of protein to speed up healing time and it really worked---even through a terrible bout of food poisoning.

I completely empathize with not being the kind of person to lie around and getting antsy--I've never been one to watch tv. While I keep making lists of how far I have come in 8 weeks, I still get depressed by my limitations. The visiting nurse and phys therapist warned that as soon as I felt a little better I would want to do a lot and I would have to remind myself to slow down. They are right--I did "too much" too many times already. sigh. . . Yesterday, I had planned to take a walk in our local state park. I made it around the pond and we sat and read. Then, the heat really exhausted me. Frustrating but at least I got out to the park. Having my family around to remind me to sit down, insist on bringing me tea, etc. was and still is extremely helpful.

Wishing you well!!
Posted 4/27/2009 8:52 AM (GMT 0)
Hey San, don't think negative. You will be fine very soon. Why don't you have your haemoglobin count (blood count) done. I hope you are not bleeding too much. I am just wondering about the blood loss. Have a second opinion.

I am so happy to know that you have a loving and caring husband, who is always with you, in your thick and thin, in your good and not so good times. You must enjoy weather. Why do you feel you are sick. Feel as if it is just another trying moment and you have to come out of it.

If God has put you through it, he will pull you out. So cheer up dear.

Sammies - Hi - you take care too. Keep us posted about your progress. I am happy that you are feeling much better.

Posted 4/27/2009 4:43 PM (GMT 0)

yeah  Hi to everyone,

        Thanks once again for answering my forum e-mail.

         I just got back from the hospital.The one nearest me that I don't like that much.I went in concern of the constant oozing from my incision.I left on the bandage that I had from last night,so that they could see,what it look like.They said that there was no order,so no infection.Two doctors looked at it and so do a P.A.,and they all said the same thing.So they just bandaged it back up.They did call my surgeon up in Pittsburgh,PA.and they want me to up to see them this Friday,but my hubby and I have decided that with such a long trip,we are just going to wait until the 8th of next month,and make it all in one trip.As long as I know that it is not infected,I feel better.That was my main concern and reason for going to the hospital this morning.My surgeon,did tell the doctor that spoke to them from the hospital,and said that it is normal for me to have this much drainage,with all I had done.I had one surgeon do the surgery,another one of his co workers visited me while I was in the hospital,as my surgeon was on vacation,no they want me to go see another co worker,of the surgeon who did my surgery.I would rather go back and see the surgeon who did the surgery.I like sticking with one doctor.

         I am tying not to think negitive,but I am getting tired of laying around and not being able to do what I was able to do before the surgery.I know that it is going to be a long road to recovery,but I feel like I am running out of patients.

         While I was at the hospital this morning,they did not draw any blood of any kind to check for anything.I told them what has been going on,and that I was still a little light headed and weak.They just said that is still to be expected,after the surgery I had done.

         Yes I am so thankful to have a loving husband by my side.I don't know were I would be with out him.

         I only feel sick when I lay on my right side,because that is what makes my stomach hurt.It is getting to the point where I can not get comfortable at all when I go to bed a night.I still can not lay on my stomach,it hurts for me lay on my back for any length of time,so that just leavess me with my two sides.I am a stomach sleeper.

         I know that God has brought me through this operation and all of the others that I have had,and is with me and watching over me every day.I just wish that he would hurry up and put me back on my feet soon.

         Take care and once again,thank you for reading this,I hope to hear from you soon.

                     Love and  Prayers to all of you............   San's 

Posted 4/27/2009 4:52 PM (GMT 0)
Hi San

I am glad to know that there is no infection, and nothing much to worry about. Take care. There is a saying "Worrying is like sitting on a rocking chair; You feel you have a lot to do, but it takes you no where", So do not worry at all. Can you believe, I used to work 18 hours a day, before my surgery. But today the life has changed a lot. Well that is life. It has to move on.
Posted 4/28/2009 8:19 AM (GMT 0)

 San's -  I know that you are aware of the necessity of staying hydrated and all, but being lightheaded can be a sign of dehydration.  Be sure that you have increased your sodium intake to help with retaining of the fluids that you are able to get down.  Munch on a few pretzels or saltines a couple of times a day, and continue to drink fluids.

Once you begin to get your strength and all back, you will feel like a new person.  Keep a positive attitude and let us know how things are going, k?

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