Posted 4/22/2010 12:20 AM (GMT 0)
DH has had Crohn's for 40+ years. In 2004 he had another resection and later developed two abdominal fistulas. Surgeon won't try to close them surgically as he said there is too high a chance of making things worse. Ok so we have to live with that. Because there is no stoma, output eats his skin making it seepy/weepy. Every so often, we go through a period where he only gets a few hours out of an appliance. If he is doing "ok", he gets 36 hours. This is very upsetting to him as Medicare is not paying for ostomy products. I feel so bad for him. This is so stressful and he feels so bad about the $$ being spent. Thanks for allowing me a place to go and vent!