Hi my very special friends!!!
It's soooo good to hear from you Hodaya; I continue to pray for you and have been very worried about you. I agree with Rosemary, at least ask your dr about what she said before asking for a ileo. You need to try EVERYTHING before you give up and go for the end. I know you're very frustrated and you want an end but what if something would work and you went for a more drastic measure? When I continued to have difficulties at the end of last summer with my kidney, my urologist said I might just as well take it out and I said do anything to get me through the school year and then we will decide. That's when we went with all the stents and yes it was a very difficult year but it gave him the time to think things through, research and try something that, thank God finally WORKED!!!!! I am now stentless, it was touch and go for a couple of days and there is a stricture but my kidney functions perfectly, it is now just hypersensitive due to having a stent in for almost a year and I have medication and exercises to help decrease the sensitivity.
So please go through every option first, because there is ALWAYS HOPE!!!!!! I know I keep telling you all that but have faith and keep praying and believing. Since just before my colectomy, I have surrounded myself with positive, believing, faithful people and it has made a tremendous difference in my life. I can't be around negativity anymore and things that aren't good for me. It has caused a lot of friction and hurt with some family members and some of them just don't understand; but when your own mother tells your daughters your addicted to pain pills, well, that's what I mean when I can't be around people like that because I interalize everything and it just makes me sicker. Although I would like to tell her, "Oh, by the way, I went from taking vicodin every 4 hours for almost a year to not taking any in one day, so yes Mom I am addicted aren't I!" But some people have know clue!
Go with positive thinking and if any of you get a chance; go to youtube and listen to Shawn Galloway's I Choose Love 2, very inspirational.
Lizzie-slow down and build up your strength; you so need it; I know this is hard to do but I know this is how I made it through twelve surgeries in just one week short of one year. I had to let others do just about everything or I NEVER would have made it. You need your strength; we are all here for your support but we can't help your body. STOP doing for others!!!!!!! I love you so much Lizzie; you've got to be good to yourself, you need some strength. Praying so much for you.
Tracy and Jenise-will keep on praying for you and hope find painfree days until your surgeries. Hugs and love girls
Marisa-Hoping you are doing well and having fun. Love you:)
Janie-Always in my prayers. I hope that the miralax continues to work though I can truly understand your frustration with the small and frequent bms it produces. I truly hope and pray you will get some answers and relief from someone.
Rosemary-Thank you for always being a driving force on here; it's what everyone really needs and you are truly a blessing:)
Just a couple of last good things I have to share because I know I've rambled way too much; I know I've said many times you need to keep searching until you find the right drs and you all know I've had many GIs & urologists. But I just wanted to tell you about a couple of things that confirmed I definitely that I do; after I got my stent removed, some things developed and I needed another surgery. It was at the end of the day and my dr made arrangements for emergency testing, admitting, and waited until 7pm to do my surgery, all the while phoning me personally to tell me what to do & where to go; then meeting me on the hospital floor where I was admitted, explaining numerous options & then putting in my IV because I'm an extremely difficult stick and the nurse had blew my vein big time. He went way above & beyond, then said if this doesn't work he will send me anywhere to get another opinion. Then to top it off, we were on our way home the next day & my GI called me & said he saw I was admitted to the hospital and wondered if I was ok. I told him yes, it was kidney related and thanked him for calling. So, that's when you know you have the RIGHT drs; ones who truly care about you and will go out of their way for YOU.
If you haven't found that doctor yet, find HIM/HER!!!!!!!
Love you all and praying ALWAYS,
Judy