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Ostomies
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Posted 8/7/2010 11:12 PM (GMT 0)
Consider a ostomy for untreatable anismus.

I'm having such a hard time defecating and passing gas through my rectum... and it causes me a lot of pain against my back with it constantly being tight and matter not passing through.

Help? idea
Posted 8/8/2010 12:04 AM (GMT 0)
Of course you can get an ostomy! If you have tried all medical treatments to no avail, consult a colorectal surgeon. You deserve a higher quality of life.

Sue
Posted 8/8/2010 1:22 AM (GMT 0)
I have a temporary ileostomy due to colonic inertia and anismus. I used to spend 3 to 6 hours a day on the toilet, trying to have a bm and I could not pass any gas. My anismus was so bad that I could not even get an enema to go up into the rectum and I had to resort to manual disimpaction of stool 100% of the time....my stomach was horribly bloated and I had a difficult time eating....now I spend 30 minutes or less per day emptying my bag and I never suffer gas pains because all of the gas comes out of my stoma.

I had my surgery June 21, 2010 and I am 90% healed at this time and I feel so much better. I have started some moderate exercise and I feel great.

How long have you had anismus?
Posted 8/8/2010 6:16 PM (GMT 0)
Andrew318
Hello, have they done a Sitz Marker Test on you?

Leslie

Posted 8/10/2010 9:28 PM (GMT 0)
how would I go about speaking to a surgeon?

What should I tell them? Will they do further testing? confused
Posted 8/10/2010 9:33 PM (GMT 0)
Not knowing what tests you have gone through, I can't answer your question. The best thing to do is ask for a consultation with a colo rectal surgeon. He or she will answer all your questions and request additional tests if needed.

Sue
Posted 8/10/2010 10:36 PM (GMT 0)
Andrew318
  I went to a general surgeon that I found myself and told him what had been going on.  Could no longer go poo with out doing a enema every other day to get the air out, then the poo would pass.  Then it got to the point where those did not work,  so went to OSHU in Portland Oregon months before and they told me I had a outlet prob. and pelvic floor disorder and would need bio-feed back to fix the outlet problem and then I would be fine.

So I researched it and I knew it would not work for me and insurance usually wont cover it and they wanted me to do it 2x a week for 6 moths at 200.00 a visit.  Bio-feedback has a very poor result, so I knew it would not work for me.

So I had herd about the Sitz Marker test and that was one that they had done on me in Portland and none of the markers had moved....and they wanted me to do bio-feed back..NOT...that told me my colon was not working.

So found my own general surgeon told him everything I had gone through over the years and have lost 108 lbs.  I could no longer eat, and had not pooed in 25 days, so he did another sitz marker test, I went back and he said your right your colon is not working all the markers were in the beginning of the colon and had not moved.  This was on a Monday and he scheduled me for surgery that Friday...

So just ask your doc, it never hurts if you don't get the answers you like find another doc...but dont give up.  Be your own advocate for your health.

Prayers for you

Leslie

Posted 8/11/2010 9:21 AM (GMT 0)
i know there are surgoens who do colostomies for anismus, cuz i've read of ppl who had it for simply anismus, you can check it out in this link: [email protected]. but do you feel the urge to go daily and just can't expel it, or you don't even feel an urge? but if you feel the urge, is that with the help of laxatives? you have to make sure whether it's only a defecation problem of the rectum or is your whole colon is not functioning as well. to know whether your colon is functioning right, there's a test called colonic transit time test, in which you swollow a capsule in which there are 24 little rings that can be seen on an x ray, then you take x rays every few days to see how far those markers progressed. in a normall colon the markers should be gone after 5 days. if after 5 days the markers are still in the colon, then that indicates a functional problem, but it depends where the markers are stuck - if they are stuck in the rectum area, then it means there's only a defecation problem, but if the markers are scattered throughout the colon, then it means there's a functional problem of the whole colon as well. in general, for constipation problems the main tests that are usually done are: anorectal manometry preanal U.S defecography barium enema colonic transit time google these tests and learn more about them and whether you think they can help diagnosing your symptoms. hope this helps. good luck.
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