Please tell me I'm not alone...

I have been going through a lot lately. Very depressed; abdominal pain, cramping, constipation, hemorrhoids, little sleep at night, exhausted during the day...

I was working full time but just couldn't keep up with the hours. Thankfully my work is letting me figure everything out and work the hours I want or can do. I had my reversal a year ago and had one more surgery when they found a leak about nine months ago. I am always uncomfortable. I have so much pain and really get depressed when I have a 'bad' day.

Anyway, so I've been going to therapy and one doctor said I should go to an intense program where you go like three times a week for a couple hours... When I went to get info on that program, they said they don't think its for me... my depression comes from my medical condition... I AM SO LOST!

I know I am not the only one to get down after these surgeries... right? Why are there not physical support groups everywhere?

Does anyone else still have painful movements? The hemorrhoids haven't gotten any better despite creams, wipes and diet changes... One day I'll eat rice and beans and I'm fine, the next time I do, I'm up all night! What's the deal?

Liza D
  So sorry to read about you having problems. I too have taken a bad turn myself.  I too get depressed as I figured this surgery would give me my life back.  Two weeks ago I was saying how good I felt and that I have not been in the hospital since Oct so I thought I was going to be all good and get back to life...then I could not go pooo and that just does not happen so I waited 3 days and nothing even with a fleet enema.  So I go to the ER and they did a CT and where they made my J-Pouch both connections had narrowed to pencil size so took me right into surgery and he dilated both back up to a quarter size, and told me I have 2 ulcers in my pouch and scar tissue.

Bad thing is that the dilation will not last so in January I see the doc for a visit, and the next week he is going to scope me and tell me if he can do the balloon catheter on both ends to keep it open.

Sometimes I feel like WHAT'S NEXT?????  But I am going to try and be positive because if for some reason that is not a option then consideration of a ostomy will probably be presented to me.  I hope not I want to keep my parts the way they are.  So Lizzy I am praying for you and for all the others.  Please try to keep positive, don't let the depression take you away...  MY cousin just killed himself on Dec 1 and it was due to depression...so my girl your valuable, and loved, just no that this is all temporary, at least we hope. 

People who take their own lives get a permanent solution to a temporary prob...so I don't want your depression to go in that direction...love you

Leslie

Hi i am sorry about your plight.

I am not sure about your story, but have you considered going back to an ileostomy? (that is if you had one in the first place?) That is the last resort when everything else fails e.g. you have your bowel removed but you still have ongoing problems like constipation etc.  just a thought?  i konw i felt a lot better with a bag.

take care.