Vent,question, I don't know.

I go back to the surgeon Thursday to see if he wants to surgery. He said pending on the SBFT results, which the hospital report said was normal, so I don't know. I just don't know what to do. On top of the pain that is just with the Colonic Inertia, I have had 3 impactions in a month. Worst pain of my life!!!!!! It seems like the severity of my symptoms increases every month. So first off, I don't know what I am going to do if he decided against surgery,we have spoken and he stated that the surgery is imminent but here is the issue if he says Thursday ok lets do it. I was going to plan on doing it 6/24. My husband starts vacation that day plus on the 17th my work has a huge event that I have pretty much done all the work on. The issue is, if he does offer it I don't know if I can wait that long. I don't know what to do. I am tired of feeling this way but I don't want to get in trouble with work. What would YOU DO?

If he said surgery is imminent I'm wondering why he might say no on Thursday! That's weird.

Anyway, if he DOES say no I'd ask why, reiterate the amount of discomfort you're in, and then if he still says no, I'd find another surgeon and have your records transferred. It's YOUR life. You have a right to be comfortable.

Mary,

Yes, like Hodaya said, calm down!  I am pretty sure surgery will be coming for you.  I know I am getting very anxious and frustrated and don't know how much longer I can take.  It seems like forever for me till my surgery date now, even though I am sure it will be here before I know it now!  Of course, I am starting to become a nervous wreck now, plus on top of my losing my job at the same time.  I still don't feel good most days, and get very frustrated on my inability even to work hard at passing my gas, but I know one day I will feel better to live a normal life every single day.  Not just here and there; every once in awhile; plan my clean out days; etc.!  I get tired of cancelling events with people and being grouchy, and it does bug me that everything revolves around food because I worry oh gosh, how constipated am I going to get, how bad am I going to feel afterwards, etc.  It does sound like surgery is for you, and just talk with the surgeon when you think will be the best date for you.  It is hard to predict what date, like me=losing job, it is coming at the most inconvient time and I am still upset, but I am trying to look at it now as a summer of healing and starting a new life after all these years of suffereing now knowing it was colon inertia affecting me!  Keep in touch, and I will let you know how I am doing and hopefully try to keep updates when I get my surgery on the 2nd.

everything will be fine, Mary. glad your boss is a cool guy. hopefully he will be very understanding of your condition. let us know how everything goes. thinking of you sweets!

On the 26th I'm having a proctocolectomy w/ hopefully a temp ILEO. I am 26 also. Surgery is a big thing n u can't go bck. I waited awhile n tried tons of Meds. Nothing worked. Pray n have a good support team! Hope u make the right decision. God bless u

Mary, I feel the same way!  Here I am 26 turning 27 this summer, dealt with constipation all my life.  Never understood why tummy hurt a lot, and then just thought maybe I didn't eat enough, then learned about IBS.  I never in my life thought there was an actual disease of colon inertia until last year on my first transit study.  I am like, I am too young for this.  I really kept quiet about my distention a lot during my college career until it started to get really bad about 4 years ago.  And for the past 3 years, I tried every single diet, supplement, crazy cleanse thing to fix my constipation and nothing ever helped until this past year I just relied on several dulcolax, which I still have problems with that on occasion.  For example, taking 6 last night and drinking miralax, and just let out a little bird dropping this afternoon.  I am ready to eat a normal diet, put some weight back on me, and not feel bad!  Surgery is coming soon!!!  Let us know how your appt. goes with the surgeon on Thursday for you.  Hang in there!!!

Sometimes I wonder how I advanced as far as I did in school.  I graduated my B.S. in Biology with full intentions of becoming a physician assistant.  I studied, studied, studied, and I put in a lot of hours to get good grades.  I think about it now, and I am like no wonder I never pursued further with my education because I always felt weak and never very good!  For the past year, I do just enough to get through my day at work, and then come home and sit on the couch because I don't feel good! =(  Also, I would love to further my education.  Now I have just decided I would love to get my master's or wish I did a back-up and got a teaching certificate to teach biology and math.  However, this disease has taken over my life.  Like I said, maybe me losing my job right now when I am about to have surgery will be a fresh new start for me.  I hope so!!!

As for laxatives, I tried senokot several times, and it does not work very well for me.  The only thing I find that works the best for me is dulcolax, which I absolutely hate!  One-either it is going not going to work, or work!!  Plus, I get awful cramps and chills with this laxative sometimes, but I don't know what else to do.  I try to take a stool softner just to give me something a little extra sometimes, so I won't cramp as bad b/c also, I feel one little extra pill can make a difference of going! or not going! =(

Well, I have had lots of experience in the healthcare field.  I have worked at a nursing home before, as a phlebotomist, and for the past 2 years I have worked in medical records.  Today is my last day, since I got let go.  I am def. considering doing something more once I get better though!