Radiation burns under ileostomy base plate and other interesting challenges

Hi I am RarelySeen and joined the site after reading some of the helpful suggestions, thank you, because of the nature or rareness of the tumor I had and the added ileostomy, I am finding it very hard to find answers and or support, I feel like an anomaly, anyway I need some assistance, I was diagnosed with a malignant solitary fibrous tumor (A malignant tumor not connected to any tissue or body part soft and spongy, basically bag of malignant gunk sitting in the body) on June 2011 it was 11 cm around and logged in my pelvis between my hips, it had pushed my bowel over to the side and when the surgeon was removing it, it burst on one side spilling cancer cells in my pelvis area, because of this I am currently have radiation treatment, she also damaged my bowel while removing the tumor and I have a ileostomy, I am having all sorts of problems with radiation burns under the base plate of the bag and around my stoma, I am very red and sore, I have had some success with squeezing the barrier whip fluid out and letting it dry, before applying a new base, this is working around the stoma but the burn is not getting better and hurts, does anyone have any suggestions ?

And my stoma was placed to close to my belly button and it is very hard to get a good seal, I have tried cutting the base, but as the swelling comes down on my tummy, the button gets ever closer to the stoma, ek ? Help..please

Thanks Subzeromambo, I will try it, what a good idea, I sent away to try some products last night they should arrive soon there is a wafer that is shaped like a peanut or an 8 that I think might work, I really have to change the wafer every day particularly while having the treatment as I am having salt baths and i have not found a wafer that can stay put after q 20min salt soak, i wonder if they have a rain coat for the products to keep them and me dry in the bath, but no luck so far, they get soaked through, how do you keep it fry for 4 days ?

Dear RarelySeen,

I don't have any advice for the burns, but to speak with a stoma nurse, and if she can't offer any form of relief, get in touch with a stoma nurse at the next larger hospital.
But I do want to let you know that you can count a lot of resonance and support. You write in way that gives the impressin you are a very strong person. Regarding your other posts, I wanted to support your idea of at least pulling back at least for the being and devoting all your emotional and spiritual energy to yourself because you need it to heal your body and keep your spirits up as much as possible. The other matter in life you can deal with later.
So, please know I'm here and others are here as well.

Hi I am finish with the radiation treatments now and all the burns have healed over, I am feeling more comfortable, tomorrow i have to go and have a text to check the integrity of my lower bowel, and if that is okay I will then be having a ileostomy reversal, I also go in for a scan in Dec to make sure nothing is growing ! I am hoping tomorrow I get a good report and then I get a good report on my scan and have a successful reversal - I am okay, I have had a few family challenges and a lot of the time I don't feel supported, but that's fine I can support me, well kinda, I have no choice really I just have to do all i can for me, right now and try to be my own best friend, I sometimes wish i was not so independent, but that is how I have been most of my life so I suppose that is just how it is, I find the stoma nurse has been fantastic, and this forum is good, I am a little concerned as I am not clear on what to expect tomorrow and am not frightened to say i am a little scared, wish me luck please, I will get back to you, when they tell me the result. thanks and hugs back Maggie xx