Trouble fitting ostomy pouch

I have a problem that is different than most of what I can find on the forum or by a google search. I am a 22 year old male, and I got a colostomy due to perianal complications and pain associated with crohns disease about 3 months ago.  Since then I have tried a few different hollister pouches, all one piece, nothing convex, and I cant consistently get more than a few hours of wear time out of them.  Every other post I have read complains about leakage, etc.  I don't really notice it leaking, exactly, and it definitely isnt my ouput that is "breaking" the seal.  If I put the bag on (standing or sitting, even laying, tried them all) I could wear it indefinitely if I just stayed standing or laying all day.  But when I sit down, the sides of the seal "roll" up from skin, making a little n shaped sort of hole through the seal on the left and right sides of my stoma.  if I put more pressure in those areas when I put it on, I get the same thing, but closer to the bottom, which has actually leaked before.  But most of the time, it is on the side, and it doesn't have output coming out of it, its just that I (and anybody nearby) can smell it, and it is making me miserable.

I have tried adapt rings, but they just transfer the problem to a different area.  I have also tried coloplast's elastic strips that are supposedly for this exact issue without avail.  Is it the type of pouch I'm using?  Or is it an issue with my skin in the area?  The base of my stoma is a little raised up, which doesn't seem to help, but my stoma itself is about 1 and 3/4 inch in diameter, and sticks out from my skin almost as much (which seems huge to me, is that normal?).  I am also having leaking issues due to a wound near my stoma.  The ostomy nurse said something about a mucosa fistula I think, but whatever it is, it is about the size of a pinky finger fingerprint, and it is covered in tissue similar to my stoma, as opposed to skin.  Do I need to see a surgeon to have that fixed?  It puts off mucous and makes the area (near the top) leak sometimes (as opposed to my other, "rolling up" issue at the sides that isn't "leak"ing.

Sorry to throw so much into a post, but I really should have looked for help a month ago, before I was back at work, but I just kept hoping it would get better in a couple weeks, and here I am still having the issues.  I have done most of the obvious.  No lotions or soaps except ivory in the area, i scrub it with a warm wash cloth to clean it, then dry it totally before i apply the bag.  I have cut to size pouches that I cut to 1 3/4 to 2 inches, I can fit it when I cut it to 1 1/2, but it is pretty tight then, and the stoma nurse said that the skin barrier was cutting my stoma, which created\exacerbated the mucosa fistula issue.

My stoma is permanent (unfortunate, but better than wanting to kill myself instead of heading to the bathroom every time I need to go poo.) The nurse who decided on the placement seemed to have a lot of trouble deciding where to put it. I have a long torso. My stomach doesnt have a crease there when I sit, but the skin does sort of stretch\contract to accomodate my position. I'm 6 foot 1 inch and I weigh 140 pounds, so excess belly in the area is not an issue (trying to gain weight, having minor success). I do have a belt that I got in a sample box, I have not used it. I think I have some coloplast samples tucked away in a box somewhere. Maybe I will try one of them tonight. I don't really like trying new things when it comes to personal comfort, so I've mostly just tried the 3-4 different kinds hollister sent me.

Ridgeruner just reminded me of this product:

www.cymedostomy.com

it might just be perfect for you...let us know what you find.

The microskin wafers are made by Cymed. The coloplast are more flexible than hollister or convatec.

You might also try sure seals (from active lifestyle products). They are like the tegaderm and go around the outside of the wafer (also like the microskin).... they are thinner than the coloplast strips and might work better.

Can you make an appointment w/the ostomy nurse? Sounds like you need a consult. It also sounds like another brand might work better for you.

Also, are you using anything for odor? You can use M9 drops or hydrogen peroxide (in the first aid section in brown bottles)

I haven't been using anything for odor yet, but maybe that would help. I'm now wearing a Coloplast bag that is much more flexible than the hollister one I had, and I really like that I can see the seal all the way around (as opposed to the hollister bags with the skin-colored tape that sticks down an inch out from the seal). It makes me feel a lot more comfortable with my wear, but I'm still borderline smelling something now and then. I know the back of the bag, where it as my underwear's wasitband line, tends to sweat and smell a bit, but I don't think that should be strong enough for me to catch a waft of while im sitting up with a shirt covering it. So maybe the bag isn't as odor containing as is advertised? I have plenty of H peroxide at home. How much do I use?

My issue is definitely just with the bag smelling bad while still closed. I have no trouble dealing with the smell when I empty it.

I'm on Day 2 of the cymed microskin wafers and I can smell it already. They seem to have the same issue as everything else. They go on fine when I put them on, but the side bunches up and comes up off my skin when I sit or lay down for more than a couple minutes. The clear tape part of it still seems to be intact all the way around, but the inner circle "wafer' part of it is popped up from my skin on the right side, closer to center of my stomach. It seems to be the problem area 90% of the time. There isn't really a noticeable crease in my skin or anything there, and when I put it on and I am walking around afterwards, it seems to fit perfectly, but when I sit, it pops off.