Posted 4/19/2013 2:45 PM (GMT 0)
I'm sorry you are so sick and having to make tough decisions while also being in the hospital. I didn't have heart trouble to consider, but I DID reach a point (very quickly) with my UC where I was just TOO sick to keep trying other options. There are many things...medical, holistic, diet, that I didn't have a chance to try. But, it was clear to me that I was not going to be able to stabalize enough to have the time needed to see if any of these things would work. This is how I knew it was time for surgery, if I wanted to survive. Had I kept waiting, it probably would've just led to emergency surgery, and decisions being taken out of my hands completely.
I chose a permanent ileostomy for many reasons. I didn't want to deal with 3 surgeries and felt that the ileostomy fit my lifestyle better than the JPouch. I know that countless people live very happy, active live with the JPouch, but I just didn't feel it was for me.
My surgery was just over 5 weeks ago, and I haven't looked back or doubted my choice once. Of course there is some adjustment and learning that needs to happen. I also have sensitive skin, and have had a little trouble with adhesives, but my Ostomy nurse has been great at helping me figure out what will work best for me. I have found that using appliances where the wafer does NOT have a tape edge works very well with no irritation. Having my life and my health back is SO very worth dealing with all of that and more. I feel better than I have in a LONG time....I have and appetite and can eat more than I have in a LONG time. I am able to leave the house without worrying about bathrooms and accidents and I feel well enough to actually enjoy the things I do.
Please feel free to ask me any questions. Good luck figuring it all out and getting well soon!