Here is my situation.
I had my temporary Ileostomy done this last December. I had many complications, including an Ileus as well as 2 abscesses. I was in the hospital almost a month, and out of work for another two months. My J-Pouch has not been playing very nice, so I still have no reversal scheduled. I have had ulcers and bleeding and mucous from the pouch, and My doctor says it looks like Crohns-Colitis. But all of the test she has done are saying I tested negative. I have been through Cat-Scans, Pouch Studies, and and Oscopy tests. I am being treated with Prednisone (I thought I was done with that), and VSL#3. I'm not sure it's helping much. The rest of my intestine seems okay except for the pouch. Doctor says it doesn't look like Pouchitis or any known infection. So, I'm not sure what's going on. I also have high output and use a high-output pouch. I wonder if the J-Pouch will be right for me with all of the issues?
In two weeks I am going for another Oscopy to see if I am healed enough to schedule surgery.
I have also had issues with my loop ileostomy. I have to wear a convex wafer because it's a shorty. I had some pressure ulcers and a fungal infection. It is getting better since I switched wafers and used a product called Medi-Honey (amazing stuff) to heal the ulcers.
Ideally, I would like the doctor to tell me that the J-Pouch looks good and to schedule surgery, but I am preparing myself for the possibility that it isn't viable. If it can't be done, I will be disappointed. But, if I have to get a permanent Ileostomy, I would definitely want it made longer, so that I could wear a flat wafer, and have it lowered about an inch. Right now its right where a belt would cover it when wearing dress pants.
Does anyone have any advice?