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Rough month...takedown coming

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Posted 3/11/2014 3:06 PM (GMT 0)
Can you walk to the rooftop for a change of scenery?

Fingers crossed that things start moving through...TODAY yeah Hang in there!!
Posted 3/12/2014 7:13 PM (GMT 0)
Just checking in, Sara! How's it going? Hope you're feeling better.
Posted 3/13/2014 1:21 PM (GMT 0)
I have an ileus. NG tube and PICC getting put in today.
Posted 3/13/2014 3:45 PM (GMT 0)
Ugh so sorry. Unfortunately one of the listed complications that can occur after takedown. Deep breath.....this too shall pass.
Posted 3/14/2014 8:10 PM (GMT 0)
I am starting TPN tonight. Still bloated and in a lot of pain.
Posted 3/15/2014 5:53 PM (GMT 0)
Sat down to pee and a liter of liquid stool came out. No gas though. Is that weird?
Posted 3/15/2014 7:03 PM (GMT 0)
not at all! That's how it happened for me too. In time it will all come out, believe me. So glad things are moving!!
Posted 3/16/2014 1:12 AM (GMT 0)
You're on your way...things are waking up. Hope you're feeling better.
Posted 3/17/2014 3:34 AM (GMT 0)
So glad things are moving for you now. Mine was slow to wake up.
I've been home from hospital 12 days now following reversal / take down. Overall system is still trying to adjust to J-Pouch. Have had a lot of gas and cramps followed by diarrhea (dropped 12 pounds, gained back 4 so far).
Surgeon prescribed probiotic VSL#3DS to get some "good" bacteria started in my gut. I think my system is struggling to adjust to that as well (interesting reading on that topic within the forum). I'm hoping it's all just a matter of time. Wasn't the plug and play I dreamed about.
Hope yours continues to improve.
Oh, it does feel GREAT not having the ileostomy pouch. Not missing that at all!
Posted 3/17/2014 1:13 PM (GMT 0)
So far the only time I empty the pouch is when I pee. I never feel like I just have to have a BM. I haven't had leakage. I started eating a GI soft diet yesterday at lunch but stool is still watery. I can go home tomorrow if I feel ready. I think 11 days in the hospital is enough. Was not expecting that for reversal, but yet none of my surgeries have gone smoothly.
Posted 3/17/2014 11:41 PM (GMT 0)
Are you still getting IV hydration? If so, that is probably why you're peeing so much that you always need to pee before you need to have a BM. I was peeing (and therefore having a BM) about 12 times a day in the hospital until they discontinued by IV, then things slowed down to a more normal pace.

I think that most women with j-pouches will have a BM whenever they pee -- it's really hard, for me at least, not to relax everything in that area. If I go too long without doing either one that's a good sign for me that I'm dehydrated; if I am only going to the bathroom because I need to pee (not because I feel a BM urge), that's my sign that whatever I'm eating is agreeing with my pouch and I'm well hydrated.

Sorry you had a longer stay than expected but hopefully it will be your last for a long time :-) Good luck and keep posting!
Posted 3/19/2014 9:04 PM (GMT 0)
I am home now. I am still not experiencing what a new j-poucher goes through. I didn't have to stop once during the three hour ride home. I slept a solid ten hours and did not have to get up once. I am feeling gas pain but I have to really push for anything to come out. I've only managed to push out very little today so far. I don't know why I am complaining, but it doesn't seem right to me.
Posted 3/19/2014 9:38 PM (GMT 0)
As long as you are passing something, you can eat and drink, and you are not in any kind of pain I wouldn't worry. Recovery is different for everyone. I never went a ton of times per day after takedown....not everyone does. Are you eating enough?
Posted 3/19/2014 10:08 PM (GMT 0)
Don't ever "really push". Something that helps me get out all the gas is to move around a lot while I'm in the bathroom -- shift from side to side, twist, lean forward/back, and (my favorite) stand up and touch your toes, then sit down again.

I agree with Marianne, you hear a lot from people who have a difficult time after takedown but not often from those of us, of which there are many, who don't have a particularly rough time. I was down to 5-6 BMs per day as soon as I left the hospital, and by my follow up visit to the surgeon 10 days post-op, I was able to go ~10 hours between BMs during mid-day. When my appetite picked up and I started eating more food and a greater variety of food I started having more BMs, but still nothing to write home about.

As long as you aren't blocked and you're not in pain, I wouldn't worry. Relax and heal!! :)
Posted 3/22/2014 11:13 PM (GMT 0)
Back in hospital. My bowels literally stopped once I got home. NG tube back in.
Posted 3/23/2014 12:07 AM (GMT 0)
Geez, I don't know what to say except I'm sorry and hang in there. :(
Posted 4/6/2014 5:43 PM (GMT 0)
Been in hospital for a month now. Had another surgery on Thursday. Feeling poorly. Living off tpn. Will post again whenever I get better.
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