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Does your stoma lengthen excessively when exercising?

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Posted 4/28/2014 6:47 PM (GMT 0)
This isn't a super-new phenomenon, but I've been noticing it more and more lately...perhaps as I'm getting more active...

When laying or sitting, my stoma is generally half an inch to a full inch long. However, if I'm up walking for an extended period time (say 30 minutes+), the stoma will lengthen significantly. At times, it will extend at least half way down my bag - so call it perhaps 6 inches long? The stoma and area around it can get somewhat uncomfortable to even a little painful when this happens. If I rest for a little while, it will 'retract' back to its normal state.

Is this normal?
Posted 4/28/2014 8:38 PM (GMT 0)
It's normal to change sizes a bit (I found it usually had to do with temperature) but six inches does not sound typical to me. I would definitely contact your doctor.
Posted 4/28/2014 9:32 PM (GMT 0)
My stoma fluctuates in length and width quite a bit during the day. That said, I think six inches is not so normal. You might want to give your surgeon and/or stoma nurse a call.
Posted 4/28/2014 9:52 PM (GMT 0)
Mine kept getting long and I wasn't active. Turned out I had a prolapsed stoma. So the dr moved up my jpouch surgery sooner. Otherwise he would of just fixed it. But do see your dr.
Posted 4/30/2014 3:13 AM (GMT 0)
Everyone here seems so calm about the question, but I was shocked - 6 inches? thats seems dangerously long I would freak out if it came out 2 inches!
I hope the OP went to the doctor and everything is ok.
Posted 5/13/2014 10:58 PM (GMT 0)
Yeah, I'm fine. It was more annoying than particularly threatening...

Stoma nurse confirmed it was a prolapse/hernia and we are ordering a special hernia belt from Nu-Hope. She also said surgery to correct the problem is likely necessary at some point, but since I'm young and back to my former "well-fed" state, it shouldn't be terribly difficult when that day comes.

Maybe while they're in there they can give me some spot liposuction! :)
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