Posted 9/14/2014 9:49 PM (GMT 0)
After talking to the pharmacist and the nurse again, who was the go-between for the doc, we decided I would take the med. They said the Clonidine would help with "urgency". But, not much urgency going on when I'm totally constipated. Only urgency I have is when I do my purge, combo of bowel prep drink and several other doses of laxatives. I think that type of "urgency" is a whole nother ball game!!
Did my purge yesterday, was miserable. Zofran increased to 3x/day. See the GI doc here at home hospital on the 23rd. Hope then I can say, "see, this med did nothing", and we can stop it, and move on to a real solution....like the colostomy surgery. Never thought in my life that I would want to wear a bag of poo so badly!! Just want this craziness to end and to feel better without the bowel prep every other week and the insane amount of laxatives, followed by severe cramping and incontinence. I even bought more "real" underwear the other day, hoping that some day I can wear it (rather than my bulky and sometimes noisy depends), maybe even *gasp* with no pads or anything special (except a bag, of course). It's weird when you have clothes in 3 sizes cuz you never know how bloated you might be, and then there's the pants for wearing with depends under, and the smaller ones for days you aren't bloated and dare to wear regular underwear (with a ginormous pad).
Sometimes the "little" things you took for granted become the big things you long for!
Thanks for listening. It sure is going to take a LOT longer than I had hoped or expected, but I still have faith that my GI docs will do the right thing, and find me a really reliable and permanent solution.