Posted 12/3/2014 1:39 PM (GMT 0)
Hi everyone! I have previously posted on the UC forum a bit, and have been lurking here for a while also, so I thought I'd introduce myself.
Short history, I was diagnosed with UC last July and have been flaring since last December. As you can see from my signature, I have gone through a lot of medication to try get it under control. I had a partial response to Remicade, which didn't last very long, despite double doses, and I'm back to being very sick again; 8-14 bloody BMs a day, cramps, pain, can't eat, can't sleep, feeling very unwell...
Last time I saw my GI he was referring me to an IBD specialist in a colorectal centre in a hospital about 90km from my home town; this was because he wanted him to look at my file, see if he had any other options for me, etc etc... I never had any issue with my GI, but I was happy to have another set of eyes look at my case. I had been suggesting at getting surgery, as I knew Remicade wasn't working, I think he wanted a second opinion before he made that decision.
Between seeing my own GI last, and getting this appointment, I deteriorated much more, and at this stage I am desperate to have something done, as I feel like I can't go on like this for much longer. My life is non-existant, and I am very sick.
So I met with the new GI today, and I am so happy! He agrees that surgery would be the next step, he sees that I have exhausted pretty much all options and that I have no quality of life. Next Monday he is going to do a small sigmoidoscopy (he said only about 10 cm), just to have some pictures for the surgeon to see what my colon looks like right now, and I can talk to the surgeon that day also!
I finally feel like I'm getting some control back! I know I'm going to be so, so scared when the time comes to have the surgery, but I'm scared at the moment as I'm so unwell! I just need to get my life back, and this seems like the best possible way at the moment!
So I'll probably be posting some questions on here as time goes on, and I think of them - I'm going to try put a list together to ask the surgeon on Monday! Any tips appreciated - fingers crossed it all works out! :)