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Help! Can my wafer melt, or am I NUTZ!?

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Posted 5/18/2006 1:53 AM (GMT 0)

Hi!

I have a colostmy. This is the third time this has happened to me and I am puzzled!

I was out to lunch this afternoon with dear friends. Suddenly, I knew I needed to rush to the restroom. I went to check my "bag", and I found that everything in the bagwas running out of the side of my bag where it attached to my wafer. (there was not a whole bunch, praises and thanks!)  My wafer felt very greasy/oily. In checking, my wafer seemed to be melting! ARGGGGH! The "stomahesive" was seemingly gone! I had just put this new wafer and bag on this morning!

Luckily I keep what I call "My Kit" in my purse with a complete change (wafer, colostomy bag, stomahesive, scissors, tape, panties, and two plastic baggies and a wash cloth in an additional baggie). So I was able to clean myself up and change. Of course, I had to wash that portion of my skirt. I have taken to wearing black skirts or pants out now, as that best covers up accidents and wetness.

Has this ever happened to anyone else out there, or am I lucky on my own?

What would cause this devil   Is there something I can do to keep it from happening again?

Any answer, or even just some sympathy will be met with thanks tongue

God Bless,

Madelyn

Posted 5/25/2006 4:30 AM (GMT 0)

Hi Madelyn!

I'm 20 years old and 4 months ago had an ileostomy reversal (my small bowel is now attached to my rectum). I had the ileostomy for 20 years (since i was a week old). So I do know all those wonderful embarassments that go along with the bag! In case you're not sure, an ileostomy is the exact same as a colostomy but the small bowel is brought through the belly instead of the colon.

Anyway, I did have many accidents which entaled my wafer pretty much melting off. I do feel for you. Was it a hot day or were you just hot and maybe sweaty yourself? I used to dread hot summer days even though summer is my favorite season because whenever I got too hot and sweaty the wafer WOULD actually melt and cause leakage. I too carried my little kit with me incase it ever happened, smart thinking!! I feel bad because I love to help people with my experiences but in this case the experience was just a sucky one and I don't know how to fix it. I used to use Convatec. Maybe there is another type of bag that holds better or longer, i'm not sure but I do wish the best of luck to ya. Maybe try to stay where it is air conditioned or don't wear too many layers..anything to try and stay a little cooler!! Let me know how things go ok i'll be thinking about ya!!

Ashley

p.s. if you have any other questions be sure to ask away!

Posted 5/25/2006 3:57 PM (GMT 0)

Hi Ashley!

Thanks for responding to my question! I know it sounded like a joke, but I was oh so serious! Because I had not gotten a response on this board yet, a couple of days later, I reposted on the "Crohn's" board and received a response there. I was told that usually, when that happens, it is because there is too much acid in the stuff in the bag. I think it is a combination of hot (we had 97* temps for three days in a row) and probably too much acid. I do take protonix, but perhaps that isn't enough. I did have very runny bowels, but it was such a hot day. I think it is 6 of one and 1/2 dozen of the other!

Again, thanks for answering my post. The incident at the restaurant was so discouraging. I feel better now with such nice understanding and care.

God bless,

Madelyn


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