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Parkinson's Disease
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Posted 12/3/2008 9:26 PM (GMT 0)
I would like to hear from those who have lost their sense of smell.  How far along were you after being diagnosed with PD?  Is it inevitable that those of us with parkinsons will eventually lose the our sense of smell?
Posted 12/4/2008 12:00 AM (GMT 0)
generalhosp,Welcome to HealingWell.I don't think the loss of smell is inevitable,and many pder's that i have talked to only have a partial loss strong odors in many cases can still be detected.In my case I would say 50% of my sense of smell is gone.I miss it most because it in turn affects that other important sense that of taste.I can't say how long after my Dx that I noticed this loss been to long.Has any one out there with pd experienced loss of smell?Wish you the best,and I hope you hear from others.Ed
Posted 12/4/2008 5:42 PM (GMT 0)
Thanks for answering my question about sense of smell and taste.  I heard from people on another forum who said they lost sense of smell but not taste.  I find this interesting because I thought the two senses were dependent upon eachother.  Guess not, for which I am grateful.
Posted 12/8/2008 4:05 PM (GMT 0)

To everyone who has loss of tastes or smell.........I have had PD for I really don't know how long. I got the formal dx about a year and a half ago. Since that time I have had DBS surgery. Now I have lost my sense of smell and taste almost completely.I seem to be able to taste spicy or salty foods some,but most food just taste bland. Now I can't even smell a skunk. I live out of the city so we have had several. I don't know if this is from the surgery or just part of PD.My surgeon said he never heard of this which I find hard to believe.

Posted 12/9/2008 1:07 PM (GMT 0)
Woman,Hopefully you will hear from someone that has had DBS surgery.Wish you the best,and I hope the DBS has helped relieve your pd.Ed
Posted 12/9/2008 2:59 PM (GMT 0)
At times I'm able to smell very strong smells for a few seconds, usually the smell dissapears before I can ID it.  The other day I was able to smell an outhouse I was using, but only for a few seconds.  I can't smell skunk at all.  My daughter was mad at me when I let her dog into her house after he got sprayed.  As far as taste goes, I have been continuously adding more and more salt, hot sauce and horse radish to my food. 
Posted 1/26/2009 2:30 PM (GMT 0)

sad  I have had PD for seven years. The first things I noticed was the lack of swing my left arm, people commenting  on my walking and being slow, lack of control of fingers. I slowly lost my sense of smell and taste over a one year period. Some days I could smell others I could not. Now I can not taste except for saltness and sweetness I can not smell anything. I use to be a chief but it is imposible to cook when you can not sample the food to see how it taste. Also, I find it very diffucult to cut up foods so I have completely lost interest in preparing food. The doctors do not know why this has happened. Just like my axinity and depression they do not know about this either. They give me Xanax for the axinity, but for depression I have tried 6 or 7 different meds that gave me extremely bad side effects. So i am on the xanax, sinement, and other drugs for prostrate and corestrol problems.

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