PARKINSON`S VS. E.T.,,?????

ritasfamilytree

New Member

Joined : Jul 2006

Posts : 2

Posted 2/20/2008 4:09 AM (GMT 0)

I was DX a couple yrs ago with E.T.. My nuero let me know that he would be keeping a regular check on me in yrs to come to see if the DX was correct or if it really was Parkinsons. my question is this ,, How many of you have had a doc tell you the same or similiar because of reasoning that it sometimes takes yrs for a proper Dx of Parkinsons? Thanx in advance.,,, Rita

yekkimo

Veteran Member

Joined : Apr 2003

Posts : 1283

Posted 2/28/2008 12:22 AM (GMT 0)

Rita,Welcome to HealingWell.I don't think you can ever get a 100%DX of parkinson's;That is unless you include a brain biopsy after death.DX amounts to medical elimination of diseases showing similar symptoms.So my answer to your question is that all pders have faced a similar situation as you are currently facing.I wish you thee best,and do undrstand your frustration.Been there done it.Ed

wen4003

Veteran Member

Joined : Aug 2007

Posts : 1193

Posted 3/22/2008 3:09 PM (GMT 0)

Hi Rita, I too have the same issue and am actually going to my doc next week for this very thing. The tremors have gotten pretty bad in the last few months and would like something to control them. I'm also having problems with my balance, while walking I frequently lose my balance. I haven't fallen yet as I have been able to catch myself on something to prevent a fall. I wonder if my ET diagnosis is correct, I hope and pray that it is but I wonder. Have you taken any meds or done anything in particular to help control the ET's? Just curious what others may done. Wen

yekkimo

Veteran Member

Joined : Apr 2003

Posts : 1283

Posted 4/5/2008 8:28 PM (GMT 0)

Wen,How did your visit to the Dr. go?Are you seeing a movement disorder neurologist for your Balance problems?Balance problems,and tremors sure are PD symptoms.Wish you the best.Ed

wen4003

Veteran Member

Joined : Aug 2007

Posts : 1193

Posted 4/5/2008 9:03 PM (GMT 0)

Thanks for asking Ed. I went to see the doctor last week and she thinks I actually may be having a rare side efffect from one of the meds (Abilify) I'm on for the Bipolar Disorder. This side effect apparently used to happen a lot with other meds, but since changes have been made, it's not a common thing any more. I had some blood drawn last week as she wanted to rule out some things before we did anything with the meds. I just got the results yesterday and all is normal (with the exception of my cholesterol level - it's through the roof!!!). Since all is okay on that end, now she wants to pursue the Abilify as she thinks that's the culprit. She is going to call my psychiatrist on Monday to talk with him about what needs to be done now. If this isn't taken care of, it could become a permanent thing - she used the medical term Tardive Dyskenesia (sp). I don't know much about it, but hopefully this won't become permanent. Again, thanks for asking. Wen

madmouse

New Member

Joined : Jun 2009

Posts : 1

Posted 6/18/2009 3:53 AM (GMT 0)

I was born with ET, as many in my family were, and a couple years ago started having balance problems and back pain, tremors in my legs too. Went to numerous doctors with no joy, finally found one that took one look at my chart and put it all together. She's a wonderful doc, but she doesn't believe in pain meds, and keeping me off the "hard stuff" as long as possible. My back pain is excruciating, sitting makes it hurt, standing makes it hurt. I've always been active but now, not so much. I live with some good friends, so I don't have to deal with cooking, after cooking my foot one nite ;( It's my understanding ET can be a precursor to PD, I dunno, I know several in my family have had it, and at 49, I'm relatively young. The best thing to do is try to keep a positive attitude and I'm with Yekkimo, this affords me more time to camp and fish ;)

gtmriviera

Regular Member

Joined : May 2007

Posts : 338

Posted 7/2/2009 2:15 PM (GMT 0)

WEN4003, I'm confused as to the exact nature of your symptoms, but tardive dyskinesia is generally associated with oral-facial problems although this is not always the case. I suggest that you do a search for The Merck Manual and when you reach that site do another search for tardive dyskinesia. You will find an excellent description of the symptoms, causes and who is most likely to experience this. Good luck.

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