symptoms

I was diagnosed with pd in feb 09 I take carbidopa levidopa and lately my left arm feels all the time like I hit my crazy bone has anyone else experienced this! Also instead of just a tremor my left haand is very active now. Plus the fatique is pretty intense.  This is my first time on the forum.

I am on Azilect and that has really helped with being tierd all the time , it is very expensive.  My tremmors are in the hand and going up the arm and the tremmors are in three speeds, slow, not so slow and fast.   The fast ones are usually when I am stressed and not very often.

Under my arm hurts and the top of my shoulder, but I also have cervical sponiosis, so I am not sure where the pain comes from.

I have noticed if I move my hands in different positions I can sometimes get the tremmors to stop.  I haven't had PD for very long but for now that seems to help.

lizzy4451-
Hithere everyone, I'm also new to this forum and was diagnosed 1 year ago. Right now i am taking sinemet and Mirapex and i feel that my symptoms
are progressing fairly fast recently.
My question for you lizzy is why do you think it may not be wise to start on sinemet if your young? I am 46 yrs old now , should I be concern about how much meds I'm taking? I trust my neuro. He is a movement disorder specialist and he seems to be real respected in the field. Should my concerns be the side effects. I want to trust my doc but I'm learning that I have to look out for my interests, right?

Sunny,

I'm not familiar with the numbness or non-tremor movements in your hand. I would certainly discuss these symptoms with your doctor.

 

JazzyG,

That's wonderful that you have access to a movement disorder specialist (MDS) and that you have confidence in him/her. Everyone has to make their own decision regarding PD meds - which ones address your symptoms with minimal side effects. Continue to work with your MDS.

 

Many people take Sinemet with minimal or no side effects. Some people have side effects with the most common being dyskenisia (see Michael J. Fox's 'wiggliness'). Sinemet is the gold standard and the medication that works the best today. I simply suggest that you educate yourself on the pros and cons of your medications.

 

I was diagnosed 8 years ago - symptoms for 10-11 years - and have never taken Sinemet, so I have no personal experience ... just lotsa friends who take it. I have opted to take a dopamine agonist - Requip or Mirapex - but dif meds work for dif folks. I am 'saving' Sinemet/Stalevo for the time when my symptoms are worse. That's a personal choice I have made based on my symptoms, lifestyle, work situation, etc. What's right for one person isn't necessarily right for the masses - there are other alternatives as well.

 

I would be amiss to not mention again (said this in a different post) that I am a HUGE supporter of the benefits of exercise for people with Parkinson's. I feel that rigorous exercise has made a difference in my progression rate.

 

lizzy4451

I am 48, diagnosed a year ago and on the generic version of Sinimet but next doctor visit I am going to see about a different med. Sinimet works but I am concerned about side effects. I already feel like I am getting diskenesia. My symptoms were dytonioa (toe curling in my right foot during excercise which I do a lot but it got to where I could not run or do similar movements), right arm not swinging and shakiness. The Sinimet allows me to excercise and sometimes without it my toe curls even when I walk but I feel like I rock a lot and have a hard time sitting still. I tried Requip and Mirapex and both made me naseaus and tired but I may try again. I also take Azilect. I don't know that there are many other options.

Yes Azilect is pretty new and there is no generic version and it is expensive.