Mom's Unresponsive, sleeping all the time....it's scary

Dear all,
I am new to this forum. My mother has had Parkinson's for the past 20 years.
She is almost 94.
She lives in an independent setting in a community for the elderly and has had a full time caregiver for the last 7 years. Yes, we are blessed to have been able to do this for her.
She is running out of money just when we need it the most.

That may all be a mute point. Mom's PD has gotten worse in the last 2 months. Much worse.
She started having swallowing issues, she falls, we couldn't keep her in bed.
Hallucinations have been increasingly wild. She is angry and bellicose often. She has been focusing a lot of her anger on me. Oh well. It's been crushing for me to witness.
It's so hurtful but this isn't a time for that.

Two days ago, Mom, who has had a big appetite all her life is now not interested in food. She has wound down so that you couldn't understand her speech, she ceased speaking and now can't speak and she sleeps all the time. Sometimes she is responsive, and will make a sound to indicate that she hears you. Other times she is completely unresponsive.

I so wanted to ensure that Mom's last days were nice and I was not able to accomplish that.
I am here for her. I hope that she isn't feeling alone.

This is an awful disease. I don't know what to do. I don't know what to think !
Does she have weeks? Months ?
She just got over pneumonia and could easily get it again as all the congestion isn't gone.
I don't know how to help her.

Hi, my Mom was diagnosed with PD when she was in her early 30s she's 60 now, I'm divorced wit 5 children 4 that are still home 3 are under the age of 8... My 20 yr old daughter and I are now moved in with my Mom along with the 3 little ones, she was living with her care taker I didn't visit much I have no excuse at all other than I was working full time and raising 5 children on my own, about 3 months ago her car take advised us he could no longer do it,.she was taken to the ER she hadn't ate or taken her meds in a week, when she was released from the hospital my uncle took her to his home where him and my grandparents decided it was time to place her in a home, my brother was outraged, so here I am now taking care of her with no help from my brother, no calls no txt no visits.. I thank the.Lord for the compassion he has given me and the patience.. But it's so emotionally draining not knowing what to expect.. Not knowing what to look for, she is also in the last.stages and every day is so different from the next, one day eating next she.can't swallow she's been passing out she gets so stiff and cold I don't know sometimes is this it, is it happening now then she comes out of it takes an emotional toll on me and my daughter, I'm afraid to loose her but I know she is so tired of living this life. She has the DBS implants so medication is less, but her speech is almost gone I get her out of bed every day, keep her clean. I read in one of the posts the phrase statue like and that is so true, she smiles at the little ones they entertain her , they know granma is sick but not to the extent, idk what to tell them, my 6yr old noticed the other night she doesn't laugh anymore.. This breaks my heart, the woman who raised me, my Mom does not deserve this she went through so much.. I'm so angry and idk who why or what to be angry at, I just want my Mom back... I just needed to get this off my chest no one understands unless ur going through it..

My mom is in the final stages of Parkinson's and she resides in a nursing home for the last 7 years. She recently had her feeding tube changed and she had a mild stroke. She has not recovered. There were times before the stroke when she slept constantly and she was unresponsive. That's why we put the feeding tube in. The sleeping seemed to become normal again but now, after the stroke, the Parkinson's has become very severe. Before that we noticed that she had difficulty using her voice and the volume of the her voice would go up and down, sometimes we couldn't hear her at all. She is now 89 years old and I watch her everyday becoming more and more fragile. She tries to speak and it breaks my heart that I don't know what she is saying. She's trapped inside her body. A few weeks before this occurred I had talked with her about the possibility. It was a rough discussion but I wanted her to know that I would always be there and that when I didn't know what she was saying, I would just assume she was telling me that she loved me. I told her my answer would be, "I don't know what you said, but I love you too."
The only advice I could give anyone is to stay close to your loved one and say what you have to say before we face those final days. I have said everything I could possibly say to her. She now sleeps 24/7 with very few moments of her eyes opening. I lay down next to her and hold her so she knows I am close. I put on her favorite television program (the old movies) and I put her earbuds in so she can hear something she enjoys.
Hang on tight, others are going through it too! We understand.

Hello JDsong,

Your situation is different from my mom's. The only knowledge I have is that when the body has an trauma, such as surgery or a broken hip, the Parkinson's takes many steps backwards. Although the patient recovers, the Parkinson's stays at it's new point, meaning that when it becomes worse it does not come back to the point before the surgery. It's a difficult thought when it is our loved one. When the nursing home states that she is mentally and physically declining, it is termed, "failure to thrive." They are caught inside their bodies and it is hard to watch. If she has lost the ability to swallow, that will probably not return. My mom too, sleeps all day. It is actually not sleeping the way we sleep, it's just a state of "twlight" so to speak. She can hear you and each day I tell my mom that I love her and I tell her what day/date it is. I remind her about people who call to ask about her and I tell her that we are planning for the holidays with her. Always remember that she can hear you. I have also asked my mom to "blink her eyes or move her lips" if she can hear me and she always does. Stay close to her...and make sure she doesn't have pain. Unfortunately, that is all we can do. My best to you and your family.

NowWhat?

I have read all of these responses and am very sad to hear this. My mom is 64 with Parkinson's and Dementia. She is unable to do anything for herself and it is so horrible to see this. I also have read some of the stories about people living with Parkinson's for a long time. My mom has only had this for about 5 years and it is too the point where her care taker has to do everything for her. I am unable to talk to her doctors to find out why she has progressed in the worst way possible due to the fact that my step father wont even give me the doctors name. It's so hard for me to visit because it feels like I am failing her but every time I try to help my step father pushes me away. The last time I visited her caretaker told me that it took 2 hours to feed her lunch because my mom wont chew her food.

I was wondering if not chewing the food is the same thing as swallowing difficulties or could it be that her brain wont allow her to swallow it.

My dad had Parkinsons. I was lucky. Both he and my mom had living wills made up while they were still healthy. It sure saved me alot of decisions. My wife and I also have one. I advise everyone to have a living will, if they don't already have one made up. It takes alot of pain and guilt away from your close relatives.