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Parkinson's Disease
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Posted 12/29/2012 10:50 PM (GMT 0)
I am a 57 yr old male who was diagnosed with PD 2 yrs ago. I am not a whinner and not feeling sorry for myself. I have read a lot of these threads and feel so bad for people dealing with family who are so precious to us suffering with this ugly disease. My heart is broken for folks who have given up their lives to take care of their moms and dads. I have a deep respect for you and what you do. I think well before i was diagnosed i had a lot of non motor symptoms of PD. I went through depression and mood swings for years prior to being diagnosed. You know? It was kinda a relief to finally know what changed a person from a fun loving person to a person I don't even know sometimes. I know I have suffered with depression and anxiety for years and it's hard to think anything could be worse than that. I have 4 loving daughters and I know that if and when this disease gets really bad they would be there for me, but I don't want to be a burden to them. I love my daughters more than my life and thank God for them. I am going to leave them a diary of my desires when I get really bad. Put me in a home and get on with their lives. I don't want them to lose any blessings and fun in their lives. I just wanted to let others know that whatever we go through in live there is a better day coming. For those of you who have cared for your sick loved ones, I believe you will have many stars in your crown when we get to heaven. God bless all.
Posted 12/30/2012 12:32 AM (GMT 0)
betterdayz
A diary of your desires is an excellent idea. I was diagnosed in 2009 at 65 YO. My desires are known by my family. In addition to that a few years ago I started a file on our computer about my life. You know, the things before my kids were born that might be of interest. I record via microphone on my computer. It has been some time since I added anything. You have prompted me to get back to it. I always wanted my mom to just talk into my recorder but she would not. She said "I don't know what to say".

Dan
Posted 12/30/2012 2:34 PM (GMT 0)
better days
my 65 yr old mother (a pd patient for 3yrs) have similar thoughts..she doesnt want to b a burden on me. she is all the time insisting on doing things on her own. pls never think yourself as a burden. when we r doing things for our loved ones, its definately not a burden

Manisha
Posted 12/30/2012 5:18 PM (GMT 0)
Thank you for the post. I just want my girls to live a great life and to remember how things were and not see the worst part of PD. Knowing my girls they will visit and do anything for me they think will help. I guess I just don't want to live in their home and them having to give me intensive care. I have a serious tremor in my right side but can still work and do things. I heard its a slow progressing desease and the final stages of this may not come for years. Your mother is very brave and I wish you both well.
Posted 12/30/2012 6:57 PM (GMT 0)
betterdayz
After reading your posts again I can see how negative you are about your PD. That is understandable! I started 5 years ago. We both know about the long term symptoms. I don't read those posts or anything negative.

What medications do you take? What exercise do you do? If you want to help your daughters, and yourself, get out of the negative attitude. Do something you enjoy for exercise not just physical repetitive exercise. Walk, run, ride a bike, dance, swim, get a Wii, something. I live in Michigan. Not much to do outside this time of year. I have a ping pong table and play against myself every day. The table is set up one side up and the other side down. I get a real workout. If I don't play for a few days I really feel the negative effects. I am right handed. One day after a few weeks I hit the ball to my left side. I switched the paddle to my left hand and returned the ball. I had never held the paddle in my left and did not plan it. It was just a reflex. I am now as good left as right. Thanks PD!??!!

Dan
Posted 12/31/2012 2:08 PM (GMT 0)
betterdayz, I am a 41 year old male.  I was diagnosed about a year and half ago.  I understand where you are coming from, I also have 4 daughters.  The thought of being a burden on any of them or my wife is one of my biggest worries.  I dont know how it works for you but the more I stress about things the worse things get.  As much as the future is a worry, I am learning that the only thing I have some control over is the here and now.  Good luck with everything..............Colt
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