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Parkinson's Disease
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Posted 2/8/2006 7:40 PM (GMT 0)
I WAS WONDERING IF ANYONE HAS HEARD OR EXPERIENCED THEIR LOVED ONE SEEING BUGS.  ALSO IF THEY HAVE WHAT MEDICINES HAVE BEEN USED TO TREAT THIS.  MY DAD IS 64 YEARS OLD AND HAS BEEN DIAGNOSED WITH PARKINSON'S FOR ALMOST 15 YEARS NOW.  THIS PROBLEM JUST STARTED OCCURRING JUST AFTER THANKSGIVING.  HE SEES BUGS ON HIM AND EVERYTHING ELSE AROUND HIM.  THIS IS VERY AGGRAVATING TO ME AND MY MOM BECAUSE WE ARE THE ONES THAT TAKE CARE OF HIM WE TELL HIM THERE ARE NO BUGS AND HE LOOKS AT US AS IF WE ARE CRAZY.  IF ANYONE HAS ANY SUGGESTIONS LET ME KNOW. HIS NEUROLOGIST PRESCRIBED SERAQUEL BUT THAT DID NOT HELP.  

Post Edited By Moderator (Admin) : 2/21/2006 10:25:48 AM (GMT-7)

Posted 2/9/2006 5:11 AM (GMT 0)
Hi there, I too had hallucinations, one night I found myself at 3 in the morning at the kitchen stove, with no clothes on and the oven door slipped out of my hand which is what woke me. I was somewhat scared by this and told my husband I didn't know if I was going to bake a cake or kill myself ;<} A few nights late I woke up in the front hall with all of the lights on and was trying to tear the light switch off the wall, another time I was trying to walk through a door that wasn't there. We were both worried lest I leave the house during one of these episodes. It turned out that I was having a reaction to Mirapex. I had been taking sinemet cr 200/50 three times a day and the neuro. put me on mirapex too. I thought the PD was just progressing but it turned out I was having a toxic reaction to the mirapex.
I hope your dad is able to get over those horrible hallucinations, I am the same age as he and I too was diagnosed 14 yrs. ago.
Good luck
Lizzy B
Posted 2/9/2006 12:34 PM (GMT 0)
Lizzy B

Welcome to healing well.We are glad you found us.Thank you for sharing your experiences with us.Mirapex can be a fantastic med for some,and the devil in disguise for others.I am thankfull that it works for me along with stalevo.I hope you make healing well a place you visit often.Stay well.Ed
Posted 2/9/2006 12:42 PM (GMT 0)
Caregiver85023,

Welcome to healing well.Hallucinations are frightening to say the least,as you have probably read some are asociated with PD meds some with PD.I would say you need to work with your fathers neurologist on this problem.I hope we can provide you with some advice in your role as a caregiver.Stay well and the light is always on at healing Well.Ed
Posted 2/10/2006 5:15 PM (GMT 0)
Hi everyone,  I have a type of parkinsons called MSA and am 32 yrs old.  I just wanted to say that I also have hallucinations.  I had several last week when my blood pressure was very low.  I dont recall these but my mom and stepdad who I live with now tell me of what I say or do.  It is pretty scary.  I dont know if mine is associated with lack of oxygen to my brain or to the actual MSA symptoms.  But the MSA makes my blood pressure drop so I guess it is all related. 

Posted 2/19/2006 6:08 AM (GMT 0)

i just found out my dad has been seeing bugs for a while...i dont know how long and his time perception is all off but he thinks its been a long time. and in the last day or two he is seeing things that aren't there...i thought maybe this was due to lack of sleep because i dont think he sleeps any more than an hour at a time but usually only half an hour and then doesnt sleep again for who knows how long. he gets up countless times to go to the bathroom or move to a different place. he just had back surgery and is still in pain so sitting and laying down are difficult and therefore so is sleeping but it was bad before too i think. i dont live with my parents but i have been at their house for an extended period of time and am really struggling seeing him like this. and after these halluncinations have come up i dont really know how to talk to him. how do i deal with this?

purplemisa

Posted 2/19/2006 2:47 PM (GMT 0)

Hi purplemisa,  I wanted to tell you welcome to healing well.  I hope that you are able to find the kind of answers and support that you are looking for here.  Everyone here is so great and this website has been informational for me. 

I was wondering if your dad was on any medication?  Does he take anything for sleep?  I also have the problems that you have described, getting up several times in the night to go to the bathroom, seeing bugs that aren't there.  I am not on any parkinson's meds but I do take several medications for Multiple Sclerosis one of which is Zanaflex which is a muscle relaxer at night and ambien which puts me to sleep and should keep me asleep but doesn't.  Maybe talk to his doctor and see what the options are.  I am also pretty new at this as my symptoms have on been going on since this past August.  I live with my mom and stepfather.

Good luck and please keep us updated.

Posted 2/19/2006 3:06 PM (GMT 0)
Purplemisa,

welcome to Healing Well,as Elisha said you need to talk to your fathers Dr.If you haven't allready.This could be as easy to fix as a change in medications;or an addition of a medication.Wishing you and and your Dad the best.Stay in touch the light is always on here.Ed
Posted 2/20/2006 9:52 PM (GMT 0)
ed and elsiha and anyone else,

thanks to those who responded. we are talking to his doctors right now. his parkinson's doctor told us to call the back doctor who did his back surgery and perscribed the hydrocodone, which we are suspecting is what started the problem. but they are saying talk to the parkinson's doctor. before the surgery he was taking oxycodone in addition to three parkinson's medications which are, stalevo, peroglide, and carbidopa/levodopa (sinemet, i think) plus high blood pressure medicine called hydrochlorothiazide and hallucinations were not happening. but after a week of taking hydrocodone and not the oxycodone he started seeing things. reflections trick him into thinking there are faces in the window or people outside. the night i wrote the original post, around 2 am he thought we were having a "home invasion" and called the police. he thought he had captured the intruder. there was much, much more than just this too. he ended up going to the emergency room. they gave him a new perscription for oxycodone and ambien (for sleeping). the hallucinations are better but not gone and he still isnt getting hardly any sleep. at night the hallucinations are much worse. i was up all night with him because every 10 minutes he needed help because of his pain and he was freezing and therefore couldnt move to stop the pain. he thought he was being held down. the sleeping pills confuses him so much. it doesnt keep him asleep, i think more because of the pain. he isnt fully aware that his dreams are not really happening. his dreams are already so vivid and nightmarish. so thats the update. hopefully things will be answered in the next couple of days. as for now things are really rough.

best wishes to all of you out there, purplemisa

Posted 2/21/2006 5:01 PM (GMT 0)
HELLO EVERYONE AND THANK YOU FOR YOUR REPLIES!!!!!

HELLO EVERYONE AND THANK YOU FOR YOUR REPLIES!!!!!

MY MOM WAS READING A NATURAL CURES BOOK AND IN THERE IT SAID THAT PEOPLE THAT ARE LOW ON THIAMIN HAVE HALLUCINATIONS. WE FIGURED THAT IT WOULD BE WORTH A TRY. SO FAR THE LAST THREE DAYS I HAVE BEEN GIVING MY DAD A B COMPLEX VITAMIN AND THE HALLUCINATIONS SEEM TO BE BETTER. ANYTHING IS WORTH A TRY I WILL REPLY IN A FEW DAYS AND TELL YOU IF HE IS STILL IMPROVING.
Posted 2/21/2006 5:32 PM (GMT 0)
Caregiver,glad to hear you are getting somewhere with your Dad's Hallucinations .Keep us informed.I would also add keep his Calcium and potassium up with orange juice or a bannana.Ed
Posted 3/6/2006 5:56 PM (GMT 0)
It's nice to see there are other people going through the same thing as me and my family. My dad is 66 years old and was diagnosed with Parkinson's Disease about 15 years ago. He's been having hallucinations for about a year now, but it's just in the last few weeks that it has become really bad. He sees everything from bugs to snakes to children to pregnant women appearing in front of him (or in the case of the bugs and snakes, on him). We try to convince him that they're not really there, but that just aggravates him. It makes me really sad to see him like this. He has an appointment with his neurologist on Thursday so we're hoping a change in medication will help reduce the hallucinations.
Posted 3/6/2006 11:36 PM (GMT 0)
Ariess28,

Welcome to hearing well.Sorry to hear of your Dads hallucinations.As you say a change in medications will hopefully solve this problem.Wishing you the best.stay in touch and let us know how things go.Ed
Posted 4/6/2006 2:39 AM (GMT 0)
Hello. My father has been diagnosed with Parkinsons for last 10 years. Hallucinations have become more pronounced over time, not necessarily seeing bugs but seeing children,spots,reaching for things that aren't there. Very upsetting to see but sometimes improved when his meds are adjusted. We are still looking for proper balance of meds that affords him mobility without worsening hallucinations. Any tips appreciated. His MD has recently started him on Seroquel at bedtime..we'll see if that helps. LM
Posted 4/6/2006 11:00 AM (GMT 0)
LM


Welcome to Healing well.Wish you and your father the bestI hope this med stops the hallucinations.Please keep us informed,and I hope we hear from others on this frustrating miserable experience with hallucinations.Ed
Posted 5/26/2006 5:51 PM (GMT 0)
I have posted on another thread about my husband and hallucinations.  I was told by the visiting nurse that seeing bugs is an indication of overdose...mirapex she guessed.  I spoke to the neurologist and he believes it is a med problem but at this point just finding the balance is frustrating.  The hallucinations are so vivid and terrifying for him especially at night.

He also reaches for phantom dishes and people but that may be due to his double vision.  He has had that checked and doctor is making a "fogged" lens for one eye so that he will no longer see double images. Prisms work for some.  She said the double vision is result of medication and the fact that the muscles in his eyes are unstable.

I am hoping the Seroquel will help with hallucinations as we are both feeling the exhaustion of sleepless nights and isolation.  We don't see much of family or friends these days.  I can understand that on some level because we are not exactly social butterflies any more. 

I have taken hope from many of these posts. My husband was diagnosed 15 years ago and it is only in the past year that we have dealt with severe symptoms.  Not bad over all.  Saragh

Posted 8/20/2010 3:49 PM (GMT 0)
for those looking for answers to the hallucinations. I can't tell you how to be rid of them.. but.. what helps my mom is I hold her hand.. and tell her to close her eyes.. her hellucinations usually take her places she is afraid of.. like up high.. so I tell her to take two steps.. and then sit in her chair. and relax.

you can see her physically try to take two steps from the chair she is in.. and you can see her relax. I talk to her in a soft calming voice.. and what ever it is we use this to make it go away..

when she is having issues with breathing.. I tell her to close her eyes and take deep slow breaths.. she does and I can relieve her discomfort in this way.
Posted 8/31/2010 11:15 PM (GMT 0)
Does anyone have audio hallucinations? I take Mirapex before bed and hear phones that ring for a second ( but are really not ringing), a dog barking, other normal sounds that are not really happening. I never have the "sound" hallucinations during the until I'm sleeping.
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