I chose the colour blue because it best describes my mood today. My husband has been on Seroquel for two weeks and the hallucinations seem more constant and severe at night. The neurologist doubled the dosage and I fear there has been no change. The neurologist has not seen him in three months but prescribes based on believing this is med related. The social worker who has been coming for six weeks says she has noted a downward movement in both of us. I was always active in the community but have become isolated because I don't know how he will be when I'm out. I do have some respite but any relaxation is cancelled by the horror he experiences in the night.
He remembers them. Says he knows they are not real, but at the same time won't come into the bedroom because of all the people and what they are doing.
I am frustrated because I do not want him to be in a long term care facility if there is a way he can have quality at home.
I am hoping there is someone on the forum who has had a similar experience and can offer something to me. Saragh.