"Freezing" - a symptom of Parksinson's disease.

Dear T.

I am sorry to hear about your mobility problems. I am also Parkinson's sufferrer, however my major issues are dyskenesias, balance and medication resistance. I have several acquaintances who do suffer from PD related freezing. Their freezing is of the classic nature and occurs while they walk. From talking with them, freezing is difficult to manage. The PD meds work better with movement related symptoms than rigidity and freezing. Even after DBS, their freezing and rigidity remained. I wish I could offer better insight, but it is my understanding that freezing is a "beast" to be reckoned with and is harder to medically manage then some of the other hallmark PD symptoms. Best of luck.

I have PD, but don't experience 'freezing' episodes (yet). I can only relay what others say. To break free of a 'freezing' episode, try walking backwards. If using a walker, get the ones with a laser light that shines on the floor from one side of the walker to the other. Somehow looking at the laser light line that shines from one side to the other in front of your feet breaks your brain free of the 'freeziing' episode.

 

I have heard the same comments about 'freezing' in doorways and small areas. Best of luck.

As Lisa says consult with your Dr.before using anything nonprescription The co. which produces cellgen has a disclaimer which states"The above statements have not been evaluated by the FDA.This product is not intended to diagnose,treat,cure or prevent any disease."I will not mention the company name tnat sells cellgen,as it is against Healing well rules,but at 109 bucks for a 45 day supply they must be hitting it big time.

Vivien,
Thanks for the input,cellgen has been around for yrs.I have not tried it but would like to hear from anyone with P.D. that has.

Hi,

I am Heekee. Vivien told me there are a few PD sufferers on this board. It is my pleasure to share my experience of taking CellGen if it can be any help.

My PD symptom started about 4 years ago. First my right hand began to shake, then both hands. It got worse and worse until I can't write any more and even difficult for me to go to bathroom. Besides, my memory became terrible. I could not remember anything. I frequently fell down while walking. As a result, I could not get outside my home for year and a half, except when going to see my doctor.

Three months ago, Vivien talked with me about CellGen. I gave it a shot without much hope. I wouldn't call it a miracle, but things are obviously getting better. Now I can step outside my door to the neighboring park just by myself and my memory seems recovering. Although my hands still shake, but at least now I can type in this post now.

Now I am continuing to take CellGen. It may not be so effective to everybody, but it won't harm to give it a try for other PDs like me.

Heekee

Ed

Thanks!

Before CellGen, I had been taking Madopar for four years, two pills per day. It helps to relieve my PD, but seems only temporarily. All the symptoms started to come back after a few hours. While with CellGen, I still take Madopar, but reduce to one pill per day, according to the suggestion of my doctor. Therefore, either CellGen is healing me or it improves the effect of Madopar, I am definitly benefited from CellGen.

The only drawback of CellGen is its price, $80 per 90 capsules, and it is not covered by health insurance.

H.K.

Luckily for me despite some pretty advanced PD my balance is good and I try to get it checked at a gym or kessler (physical theraphy) with the proper equipment every month or two. I usually freeze when I am walking and I abruptly need to stop short. I can usually tell when I am more likely to freeze and it has to do with a full mid-section (say if I need to uruinate) it will happen when I am taking those small jerky steps. Looks like a shuffle.

The only thing I have found is just to keep on moving even if that means falling forward or to one side/knee or into a wall maybe holding onto a chair. I am young and again my balance is good so I am not afraid to fall and I usually don't. It ain't pretty but it works...it is like if the bus is racing down the street PD or no PD I am finding some deep dopamine stor and I am getting out of the way.

Here are the ingredients of Cellgen mentioned by Vivien and Heekee above. Hope this can help the PD patients understand the product:

Acetyl L-Carnitine (ALC) is a cognitive enhancer and neuroprotective agent that protects against a wide range of age-related degenerative changes in the brain and nervous system. ALC is an ester of carnitine that modulates cellular concentrations of free coenzyme A and acetyl-coenzyme A, two compounds integrally involved in numerous cellular functions, including the transfer of fatty acids across mitochondrial membranes for energy production.*

Creatine Monohydrate is a popular new supplement that serves as an energy reserve in muscle cells. Muscular contraction is powered by the breakdown of ATP (adenosine triphosphate) to ADP (adenosine diphosphate). When all the ATP is broken down, creatine phosphate in the muscle donates a phosphate group to ADP, and further energy reactions can occur. Creatine monohydrate is a precursor to creatine phosphate. By supplementing with creatine monohydrate, creatine phosphate levels in muscle apparently are maximized, and more muscular work can occur, since there are greater energy reserves to use.

Choline is substances needed by the brain to produce acetylcholine, a major brain/motor neuron neurotransmitter that facilitates the transmission of impulses between neurons. High doses of choline are an effective way of achieving optimal acetylcholine levels. Lower levels of acetylcholine are associated with memory loss and learning difficulties that occur in aging brains.*

Alpha Lipoic Acid (ALA) is a nutrient that comes close to being a vitamin. ALA is an extremely important part of the body's anti-oxidant network. It's the only anti-oxidant that can boost levels of glutathione (an extremely powerful anti-oxidant). High levels of glutathione are essential for a strong immune system and optimal functioning of the body's defense systems. ALA not only protects the nervous system, but also may be involved in regenerating nerves. ALA is soluble in water and also able to penetrate lipid environments, a property lending considerable versatility to this nutrient

Babykk

Welcome to healing Well.I hope you get to meet some of our terrific members,and find support here.Stay well,and in touch.ED

There is a medication called Apokyn (apomorphine) that is used as an as needed basis that should help you get through the freezing spells. It is used primarily for freezing and tremors. It is very fast acting and most patients experience relief within 10 minutes.

ED
I have been on Madopar for about four years , found it very effective and it is backed up by Sinamet , Mirapex has now been added , by the way ilive in the UK.
Regards
Grace L

I am also a fulltime caregiver to my husband. I would like to hear from you anytime and if you like, we can swap stories and suggestions.