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Parkinson's Disease
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Posted 9/18/2006 6:53 PM (GMT 0)
for those that dont know me I am a 32yr old female...going to be 33 tomorrow...Grrrr!  I have had Multiple Sclerosis five years and always dealt with it pretty well I believe.  Last year I became extremely ill with very low heart rate, blood pressure and multiple other problems.  Was in and out of the hospital several times and finally this past January I got the diagnosis of MSA (multiple system atrophy).  It has taken many months for me to be able to get to a point where I am semi functional on a day to day basis.  I still cant work and am tired all the time but was starting to feel like a normal person again.

Well, yesterday I woke up to ringing in my ears, hullications, being extremely shakey and unable to stand.  My blood pressure had bottomed out again despite all the medicaiton I take for it.  My mother had to help me in and out of the bathroom and to my recliner and back.  Even sitting up was torture enough.  today is almost as bad...and I am posting from my chair reclined as I cant sit up for very long.

I am scared of living my life this way, of falling and possibly hitting my head in just the right place and never waking up, of never knowing when this is going to happen to me and that the diease is always in control.

I am sorry I really dont have any questions I think I just needed to vent some.  I am scared and feel so very alone...thank you all :-)

Posted 9/18/2006 7:20 PM (GMT 0)

Elisha, so sorry that you are having these issues right now, have you made a doc appt? I dont have anything else to suggest but just want to let you know that you are not alone and my prayers and thoughts are with you

Jules

Posted 9/18/2006 11:39 PM (GMT 0)
Elisha,sending thoughts and prayers your way for a speedy recovery.Know that many others are thinking of you,and hoping you will soon be up and about.Ed

Posted 9/19/2006 5:33 PM (GMT 0)
Els,

it makes me sad to know that you are so down right now. Although you say the disease is in control try to think back to the better days, days when you don't feel so crappy. 

I know its particularly difficult for you because you have more than one thing wrong with your health and its hard for anyone else to know what goes on in your head when you are feeling to poorly.  On top  of my PD I also have chronic renal failure the end result being that I shall have to go on to dialysis at some stage.  I feel so tired at times that I can hardly walk to the bathroom.  My way of coping is to make the most of the good days that I have.  They are not really "good", just better, but those are the days that I make the most of. On those days I try not to think of illness but think of nicer things and say a few prayers.

Sincerely hope you feel better soon.  Keep us posted

God Bless

BILLY

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