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Who here has restless legs

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Parkinson's Disease
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Posted 10/30/2006 6:47 PM (GMT 0)
I literally shook my legs all night and couldnt sleep. Im doing it now on the computer, rotating my foot over and over.

Also any comments on taking calcium to help parkinsons.  Not sure if its my bp med doing this , but not listed as a side effect. I seem more nervous and shaky

Posted 11/1/2006 5:44 AM (GMT 0)
I just read your post and am wondering if, I have something
similar to your condition. I have Parkinsons disease and
it is predominantly on one side. I have rigidity in my left leg
and sometimes the foot. I have had PD for 3 years now. I
have been having more trouble this fall, so my Dr. upped my sinemet & added Comtan. My foot sometimes seems
restless like yours. It comes & goes. Would appreciate
your thoughts on this. You may email me at
[email protected].
Posted 11/3/2006 6:38 PM (GMT 0)
Id rather not take any drugs . Id rather try something natural or vitamins. Im not sure i can even go back to my doc i have after my next visit and I have no money or insurance and no i dont qualify for disability or any programs.

 I can even feel it when i stand. and i dont even know whats shaking when im standing.

I heard we need alot of calcium for parkinsons and i onlytake one

Posted 11/4/2006 6:52 AM (GMT 0)

I'm from the Ulcerative Colitis board, but I noticed you mentioning Restless Leg Syndrome.  I have that as well, and my doctor prescribed Hydroxyzine to help.  It makes you drowsy, and it's supposed to calm the body down, so your legs and/or arms don't move around as much when it's time for bed.  For me, the more rigid my 'bed' is, the better I sleep.  I've been sleeping on the floor for a few months now, since the Restless condition doesn't bother me as much that way.  There's also Requip for Restless Leg Syndrome, but that's quite expensive.

Nathan

Posted 11/24/2006 10:26 PM (GMT 0)
he says its not restless legs unless you have it before or during bedtime. I have it all day and he prescribed clozapam or whoever you spell it and amitriptyline
Posted 11/26/2006 10:00 AM (GMT 0)

Hi ttwarrior,

I live in California. Here, if a person cannot pay for medical care, there are clinics. Also, hospitals and ER cannot turn you away simply because you cannot pay. Where do you live?

The Amitriptyline is commonly prescribed for restless leg syndrome. My docs gave it to me, but it didn't help. What did help was Requip, but it was very expensive. My doctor, probably out of desparation, said I might try Benadryl. I did, and it worked for me! I buy the generic brand, Equate brand from Wal Mart, and it is much cheaper and works the same for me.

I am praying that you will be able to find a way to get the medical help you need.

God bless,

Maddi

Posted 11/27/2006 5:04 AM (GMT 0)
benadryl is for allergies i thought
Posted 11/27/2006 6:22 PM (GMT 0)
Yeah, but for many, including me, when a Benadryl is taken at bedtime, you sleep like a log! And, at that point, "I don't know nothin' about RLS or shaking or jerking my legs or massaging my legs, or getting up and walking, or tingly, burny, or feels like bugs walking on my legs." So, for me, it works!

I have also seen doctors in ER give an upset patient a shot of Benadryl to calm them down and make them more cooperative.

It does seem to work!

God bless and stay well,

Maddi

Posted 11/28/2006 1:25 AM (GMT 0)
Benadryl is listed as a nighttime sleeping aide,and a parkinson's drug.Source Nursing 2007 Drug Handbook Lippincott Williams & Wilkins publisher. I use it on occassion for sleep and it works,but does leave me groggy when I wake.Check with your neurologist before using this or any drug.Ed
Posted 11/28/2006 2:48 AM (GMT 0)
umm, i need a link, its for sinus trouble only
Posted 11/28/2006 2:51 AM (GMT 0)
ok did a seach, read it can help but not for people with high blood pressure or hypertension so thats a no for me
Posted 11/28/2006 3:58 AM (GMT 0)

I am sorry for the problems that keep you from trying it. I wish you could take it. It truly works for me.

God bless and stay well,

Maddi

Posted Today 5:29 AM (GMT 0)
I wish that Benadryl worked for me.  Like you said, it'll pretty much knock you out.  Only takes about 45 to give full affect.  But for me, it made my restless legs even worse.  Wish I reacted to it like you do.

Nathan

Posted Today 5:41 AM (GMT 0)

Hi Nathan!

Wow! You got your UC under control really quick! I think that is great!

I am sorry that Benadryl doesn't work for you! Isn't it strange that all of the high powered neuro meds don't help me at all, and yet a Benadryl is all I need! Go figure! Requip works just as well for me, but Requip is so expensive! So I stick with my Benadryl!

God bless and stay well,

Maddi

Posted 12/1/2006 8:19 AM (GMT 0)
I have RLS in the legs and arms. What i found that works on some people is a supplement called GABA [GAMMA AMINOBUTYRIC ACID] that you can find at a health food store. I take 2x750 MG about a hour before bed.

This also may help some with fibromyalgia and RLS.
Posted 12/1/2006 7:56 PM (GMT 0)

ttwarrior'1, your post has set me thinking about my restless legs,night before last it was so bad legs all over the place and banging them together so hard it looks as though i broke a blood vessel in one calf . thinking about all this i remembered i had had rls many many years and never thought about it being anything to do with pd which i have had about 6yrs , and that started with my right foot turning almost backwards . It's given me something to think about....I wonder if that was realy the start of my pd?

Posted 12/2/2006 6:09 AM (GMT 0)
is that what causes restless legs?
i'd often be sitting and my leg-usually my right one-would just be bouncing without me knowing it. they also bounce while i'm standing, and my family tells me i look ridiculous when i bounce, even though i don't know i'm doing it.
Posted 12/2/2006 6:55 PM (GMT 0)
well those 2 meds i listed are working some for it but id rather take something natural soon. I might experiment with celery seed , l theanine, more vitamin c, calcium and magnesium
Posted 5/1/2010 8:50 AM (GMT 0)
I have RLS which is very common with PD. Requip is the medicine I take. It now comes in the generic form and no longer expensive. It realy works well.
Posted 5/10/2010 4:34 PM (GMT 0)
avoid stalevo at bedtime
Posted 5/26/2010 5:01 PM (GMT 0)
Hi,

I was given clonazepam for restless legs prior ro my being diagnosed with parkinsons.  I believe it s actually a mild sleeping tablet - but it helps.  I saw somewhere the clonazepan is sometimes prescribed as part of the pd  treatment.  I use it regularly.  Hope this helps.

Stained Glass Lady

Posted 7/25/2010 12:00 AM (GMT 0)
Some folks have had luck with quinine as in tonic water Gin is optional lol
Posted 7/25/2010 10:30 AM (GMT 0)
There is an FDA ban on quinine.Before using google quinine ban.,and check with your neurologist.Ed
Posted 9/2/2010 12:02 AM (GMT 0)
I have a lot of pain in both legs at night. Neurologist said it's Restless Leg Syndrome ! Common with Parkinson's. She upped dosage of Mirapex and told me bedtime Sinemet ER wasn't lasting long enough and I should take a my 4x a day Carbidopa/ Levodopa as soon as pain wakes me. But, who wants to wake in pain at 4 a.m.? The C/L doesn't help enough-still need Tylenol.
Posted 9/2/2010 12:06 AM (GMT 0)
Why did someone say not to tar Mirapex at night?
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