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Bit of a dribble!

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Parkinson's Disease
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Posted 4/20/2007 7:02 PM (GMT 0)
Good news first - did a walk today which I havent been able to do in yonks! It is not a long walk and is on the flat. Of course I needed the rollator and I wiped a hot brow every so often and sat at the end of it.
The legs are moving freely but very slowly and I feel incredibly unable for it, I seem very weak and it would not be due to lack of exercise for I am walking quite a bit in short spirts.
Bad news - developed a bit of a dribble, the saliva comes out at the corner of my mouth. Quite distressing.
No word at all from neuro although my gp and I have both rung twice.
Our health service is in a state of 'chasis' here at present!
Ann
Posted 4/20/2007 9:57 PM (GMT 0)
Hi

Good about your walk.  Is the dribbling first occurrence? Or has it happened before?  I can only empthasise, I am sure it can be quite distressing.  My thoughts are with you.

Posted 4/29/2007 6:57 PM (GMT 0)
Hello Ann

sorry I am a bit behind with a response to yours about dribbling. As far as I know its fairly common for PD'ers to dribble and the reason is because we do not swallow as often as we used to.

As the PD progresses some people drool during their sleep and end up with a mucky pillow...not very nice but all part of the game.  I notice, however, that parkie people do not move much in bed and in fact I rarely move at all unless I am being bothered by restless leg syndrome which is another parkie side effect. I lay a large hanky on the pillow and it saves some embarrassement.

about excercise.... have you heard of Tai Chi. I go to a Tai Chi class every week and am positive it is beneficial, especial with balance.  Tai Chi is basically a streching excercise and there are no physical hurdles to overcome and it can be done sitting down.

God Bless

BILLY

Posted 4/29/2007 7:15 PM (GMT 0)
Yes, I used to do it in a 'past life' and loved it! I am at this very moment trying to find some place locally where they do it, but I don't 'do' nights. I am too shattered in the evening. It is very hard to find things in the day as it is presumed most people are at work.
Well Billy, when I mean 'dribble' I mean that the corners of my mouth seem uncomfortably wet and I am wiping em all the time. I don't yet 'drool'.
What surprises me is that my symptoms came on rather too fast for my liking. So far my twin has the hand tremor and finds feet like lead. I seem to have more symptoms and yet my neuro says that I dont have PD. Even though the DaT scan says its consistent with PD.
Both my twins gp and mine and my neuro says that a Dat result is not diagnostic.
I really am having great difficulty understanding the relevance of DaT scans and their purpose in the field of PD etc.
I am planning to fly back to London and see twin's neuro. I really can't afford it as I have been on disability for 30yrs but my neuro is being a right s...head.
Thanks Billy.
Nights are still horrendous.
XAnn
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