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Parkinson's Disease
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Posted 5/3/2007 11:40 PM (GMT 0)
Just thinking how even with meds I have good days,and bad days.Today I was able to walk a mile;yesterday I could hardly walk across the living room.On rare occassion my pd will literally disappear.Oh how I love those days.I'm trying to figure out why????I'm leaning toward the amount of sleep I get.If I have 7 or 8 hrs uninterupted sleep I seem to do better.possibly this reduces stress.In order to get this sleep I need sleep meds,which i hate to take.I am obviously producing some dopamine.Could the effectiveness be enhanced by enough sleep?I have also found that a midafternoon nap seems to help reduce the symptoms.

Anyone have similar experiences or thoughts on this?Wish you all the best.Ed

Posted 5/4/2007 9:08 AM (GMT 0)

Hope you continue to enjoy the good days Ed.  I think that when we say good days we are really saying it with tongue in cheek because a good day is when you wake up with nothing wrong with you healthwise and you have the energy to do everything you planned.

about 40% of my days are what I consider good and I always say thanks to Him for every one because they are priceless.  Some days start good but all of a sudden the fatigue overwhelms me and I have to give in to it. This can happen anywhere anytime.  Like you, I usually have a quick shut eye at about 2pm, maybe for just 20 mins but this is usually enough to pick me up.  Sometimes my legs seize up and thats a reminder that I have forgotton to take my hit of levadopa.

I am sure you are right in saying that a good nights sleep helps us to overcome our symptoms which are made worse by stress..  What meds do you use to help you with this and do they make you feel drowsy the following day.

Anybody else out there have identifiable good days and do they follow any pattern?

All the best

Billy

Posted 5/4/2007 6:01 PM (GMT 0)
Hi Ed. For what t's worth, I've been trying to factor that one out ever since diagnosis. The problem with having arthritis as well is trying to work out which parrticular strand of pain is caused by which condition but I do feel better in one sense the more sleep I have but I also take longer to kick start in themorning as I have been laying down longer. I agree what Billy says about our okay days being bad days for the'norms'. Before I started the meds the sheer sense of exhaustion by the end of the day coming home from work was beyond the pale some days. Going to bed tired and waking up tired did nobody no good. Now I get just old fashoned tired. My painkillers were given me to help stop the referred hip pain at night and enable me to get a god nights sleep as much as to control pain per se. But I have to be careful how I use them.
I should be able to have a clearer picture once I have my other hip done in August sometime. I shall feel very disappointed if most of the pain is pd generated. I'm looking forward to having a good nights sleep drug free or as near as darn it.
Have a good weekend Ed and Billy - I'm watching my son play cricket, sort of a cross between baseballl and chess.
The Bear
Posted 5/4/2007 7:30 PM (GMT 0)

The Bear said...
I'm watching my son play cricket, sort of a cross between baseballl and chess.

True, it combines the cerebral concentration required for baseball with the sheer physical abandon needed for a good chess game.
Posted 5/4/2007 9:38 PM (GMT 0)
Hi Ed I Have some very good days and some very bad days too. I think my bad days are when I don't get enough sleep or over do it and get tired out.
When I have a good day I tend to take advantage of it and try to do everything I can, like garden, ride my horse, and hike. The next day I'm tired
and crabby. If I take a nap it helps. But remember keep moving.
fiestytex
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