I DON’T KNOW about FLOODING THE FORUM, I DON’T FEEL THAT YOU ARE. PEOPLE LIFE IS TOO SHORT ........HAVEN’T YOU LEARNED THAT WITH PD.....GET OVER IT
I WAS DIAGNOSED WITH PARKINSON’S ALMOST 10 YEARS AGO. WHILE IT HAS BEEN A SLOW PROGRESSION COMPARED TO OTHER, IT IS BEGINNING TO TAKE IT’S TOOL.
ONE MORNING I WOKE UP AND COULD NOT WALK ON MY RIGHT FOOT. I HAD NOT INJURED IT, YET IS FELT LIKE A SEVER SPRAIN. IT WAS LIKE THAT FOR TOO LONG, BUT I LIVED WITH IT I WAS TOO BUSY. NEXT THE ARCH FELL AND MY FOOT WAS TOTALLY FLAT. THEN CAME THE STIFF TOES, OR THEY WOULD CURL. NOTHING IS MORE PAINFUL THAN WALKING ON THE KNICKERS OF YOUR TOES. MY BIG TOE (THIS IS ALL ON MY RIGHT FOOT) BECAME VERY RIGID, TO THE POINT THE NAIL WAS GETTING CAUGHT IN THE SEAMS OF MY SHOE. I DISCUSSED THIS WITH MY NEUROLOGIST. HE WAS ADAMANT THAT IT WAS NOT DUE TO THE PARKINSON’S AND I WAS ADAMANT IT WAS. NEXT THE FOOT BEGAN TO TUN OUT.
I HAD MY FIRST OPERATION OF THE MY RIGHT FOOT 2 YEARS AGO. THE X-RAY SHOWED THAT MY FOOT WAS COMPLETELY LINED UP, BUT IT WAS PHYSICALLY STILL TURNING OUT. WALKING BECAME MORE DIFFICULT AND VERY PAINFUL. A YEAR LATER ANOTHER SURGERY ON MY FOOT AND A THE BONE REMOVED FROM MY BIG TOE AND A PIN PLACED IN IT. FROM THE START I COULD FEEL THAT DARN PIN. AGAIN, THE SURGERY LOOKED SUCCESSFUL ON FILM BUT IT WAS STILL TURNING OUT. THEN I STARTED HAVING SEVER PAIN IN THE BIG TOE AND HAD AN INFECTION STARTING. SO OUT CAME THE PIN. I SAT THERE THROUGH THE WHOLE REMOVAL PROCEDURE AND HAVE THE PIN IN MY JEWELRY BOX. WE ALMOST LOST A NEW NURSE ON THAT ONE. BUT I KEPT CRACKING JOKES AND SHE GOT OVER IT. HERE IT IS ANOTHER YEAR GONE BY AND MY FOOT IS WORSE THAN EVER. THE SWELLING IS UNBELIEVABLE, TURNS BLUE AT TIMES. IT HAS JUST BEEN A NIGHTMARE. I AM FACING MY 4 TH SURGERY ON THE TOE ON 11/29/2006. THERE IS GOING TO BE SOME SAWING AND PINS AND SOMETHING TO DO WITH MOVING THE HEAL. I’M fairly GOOD WITH MEDICAL TERMS BUT THIS IS GETTING VERY COMPLICATED. MY DOCTOR IS GREAT AND I HAVE NOT LOST CONFIDENCE IN HIM. HE IS SO BAFFLED BY ALL OF THIS AND DETERMINED TO CORRECT IT. HE SAID HE HAS FOUR OTHER PARKINSON PATIENTS AND ALL OF THEM ARE ALSO HAVING COMPLICATIONS. HE IS RESEARCHING AS MUCH AS HE CAN about PARKINSON AND THE FOOT. IT HAS BECOME PERSONAL WITH HIM NOW........HE IS USE TO MEETING SUCCESS WITH HIS SURGERY. I WILL BE LAID UP FOR AT LEAST 2 MONTHS. I AM NOT TO BEAR ANY WEIGHT ON THE FOOT AND IT MIGHT BE EVEN LONGER. I WILL ADMIT WITH THE OTHER OPERATIONS I WA UP AND MOVING about BEFORE I WAS SUPPOSE TO. I SOMETIMES CAN BE MY WORST ENEMY. BUT THIS TIME I’M STAYING DOWN. THIS IS MY LAST CHANCE..........IF IT DOESN’T WORK THIS TIME I’M IN A BRACE FOR THE REST OF MY LIFE. BELIEVE ME I WOULDN’T DO THIS AGAIN IF I HAD A CHOICE. I AM NOW BEGINNING TO GET TINGLING IN MY LEFT FOOT AND FEAR THE SAME THING IS HAPPENING.
I DO WISH YOU LUCK, AND HOPE IT DOES NOT TURN OUT LIKE MINE. GET TO A GOOD ORTHOPAEDIC FOOT AND ANKLE DOCTOR NOW AND ADDRESS THE PROBLEM. I KEPT PUTTING IT OFF BECAUSE I DIDN’T WANT TO DEAL WITH IT. I PROBABLY WOULD HAVE HAD BETTER SUCCESS IF I TOOK CARE OF IT EARLY ON.
MY NEUROLOGIST STILL INSISTS IT IS NOT DUE TO THE PARKINSON’S. I FIRED HIM. I JUST HATE IT WHEN I DOCTOR TELLS ME I KNOW MORE OR READ MORE about MY CONDITIONED THAN HE DOES.