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Posted 8/5/2007 5:55 AM (GMT 0)

Hi everyone

 I am just newly dx to PD july 9 and I am wondering if anyone has experienced vision issues. My right eye gets double/blurred vision almost always. I can see out of the eye but reading and computer work is difficult. , I  have had episoded of prominant tremor but I dont have tremors today, just mild bradykinesia of my upper extremity with fatiguing, reduced arm swing, I also suffer with my legs with slowness,tightness/stiffness of my limbs, I suffer a lot now with spasms in my left shoulder and right side. I am on Requip 1/5 mg 4x day. I also suffer with terrible nausea. I don't really care for the way requip makes me feel...sort of woozy often, but I do walk better since I have been on it and getting up stairs is way better than what it previously was. I appreciate any input.

btrflynana

Posted 8/6/2007 9:42 PM (GMT 0)

Hello btrflynana,

It's a lot to deal with, and putting together a support system sounds great, I'd like to hear more.

I recognize a lot of your symptoms, but don't really know where to start with any input.

But here goes;

When first diagnosed (2003) I experienced reduced arm swing, very painful spasms in left shoulder, tremor (but not too troubling) and exhaustion. After delaying taking any medication for a long time I eventually started taking Requip and, like you, suffered with terrible nausea. I persevered for 6 months (far too long) but gave up and was switched to Mirapexin. I still experienced nausea for a short while (about a month) but it  got better and I rarely need the domperidone for nausea now. Of course I don't know the best course of action for you - I can only tell you of my experience. Mirapexin does make me feel "drunk" at certain times but I know it passes and am grateful for the relief it gives overall. My shoulder doesn't have nearly as many spasms, and when they do occur I am able to take dizepam as a muscle relaxant.

As regards vision, yes I have noticed a difference, but this may be due to age. My vision is deteriorating although it was very good prior to diagnosis. However it is variable - there are some mornings when I don't need glasses to read, and others when I can't see a thing without them. It does deteriorate through the day, and I have noticed it is very much affected by fatigue.

I hope you get other input that may be helpful, and wish you well,

skatergirl

Posted 8/6/2007 11:40 PM (GMT 0)
Regarding vision, my eyes blinks a lot, and sometimes unknowingly, my right eye is closed. This is a typical symptoms of PD. My first symptom od PD which I only knew when I was diagnosed was in writing. My handwriting

became smaller and smaller and crooked. Then, I'm limping. At first the internist suspected the I have a mild stroke. But after the CT scan, there's no evidence of stroke. I was referred to the neurologist then after clinical evaluation. it's Parkinson's Disease. I have PD for long-long years and I've learned to live with it. Stay active, physically and mentally, and this will keep you going.

Posted 8/7/2007 2:45 AM (GMT 0)
Thank you both for your in put I really appreciate it. I am documenting all day how I feel on the Requip that way in a few weeks if it continues I have something concrete to go over with the neuro. I have heard a lot about Mirapex....not much about Requip but they do the samething don't they? I have to admit today was the best day I have had in I can't remember how long...maybe, just maybe I am getting used to the new dosage! Wouldn't that be great!. I have heard about dry eyes because of decrease in blinking but I don't have that. I am seeing a neuropsychologist this week and also I am going to attend a PD support group for the first time this weekend, so I am feeling a bit better because I am setting myself up for a lot of support. I really feel it is important right now with this all being so new. Thank you so much again for our imput I realy do appreciate it.

Posted 8/7/2007 2:08 PM (GMT 0)
Mirapex did a great job for me. I'm taking this med for 10 years now. I'm back to life when I begin taking MIrapex. Before, it's hard for me to sign my name, my handwriting was too small and crooked. It's a big help for me, I'm back to work and to my independence. And I believe that it delays the progression of the disease. Every individual varies. Mirapex works good on me but to others don't.
Posted 8/11/2007 11:44 PM (GMT 0)
Hi everyone...well I went to my first PD support Group and they had a neurologist speak to the group today. Hubby went with me and we both reall felt it was very informative! I really think the requip and I have gotta part ways! This week has been pretty good for me overall and I feel I am really taking an active roll in getting my support system togetehr, which I think has helped me to not feel so stressed out about PD. Well I just wanted to bring you all up to date.
Posted 8/12/2007 3:45 PM (GMT 0)
 Hello,

  My name is Kathy. My mother has parkinsons, and I was wondering if there is anything I can do to support her. I am

disabled too and I live 1400 miles away from her. i speak to

her on the phone. Anything else you know of might help us.

Thank you

                                                  :-) Kathy

Posted 8/22/2007 3:56 AM (GMT 0)
I had eye surgery in Dec 2005 which I thought would do away with glasses.  I have been back many times to the eye doctor and even told him when I was diagnosed with PD in June 2006, but I just found out recently that blurred vision can be a symptom of PD.  Reading this forum will give you a lot more info than any doctor will.  As for Requip, I didn't gamble or have an affair, but there was some compulsive behavior and, I admit it, I did see some bugs that may not have been there.  I was also very dangerous when I was driving and taking Requip.  Driving down the road slapping yourself in the face to try and keep your eyes open is no way to live.
Posted 8/28/2007 12:12 PM (GMT 0)
I have cut the Requip down I now am back to the 1mg 4x a day, but the nausea is so bad. I am really contimplating getting off of it al together. I start wth a new neuro in Oct. however I am a bit concerned if I stop it my walking will be terrible again. It is too hard trying to get the meds right, but  really think this med is just not for me. I wish doctors weren't so difficult to get in with. That really is frustraitng.
Posted 8/29/2007 1:17 AM (GMT 0)
btrflynana: I am sorry you are having difficulties with your meds. For my husb. saltines helped the nausea, but peppermint is the best, and of course lots of Ginger Ale. Hope you dr/ appt goes well.
Posted 8/29/2007 9:37 AM (GMT 0)
A word of caution about stopping Requip; it is also a medication that you have to taper off.  I had only been taking it a week when my neurologist's nurse told me to stop taking it.  Within 48 hours I was taking my first ride in an ambulance.  Anyone taking Requip should be very careful about a lot of things.
Posted 8/29/2007 12:06 PM (GMT 0)
btrflynana,Welcome to Healing well.I hope your visit goes well with your neuro in Oct.I felt the same way when I took my first pd med,and in fact quit taking it without my neuros blessing.I realize now that I had not given the med a fair trial.It takes a while to get use to any pd med.If after a fair trial it doesn't work for you there are other choices.Unfortunately much of this med selection is trial an error.Heed what gtm posted,and I wish you the best.Let us know how you make out.Ed
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