No answers for new PD symptoms

Ronnies_girl

New Member

Joined : Nov 2009

Posts : 10

Posted 11/2/2009 8:11 PM (GMT 0)

Hi, I don't know if I'm coming or going today. My Mom lays in this hospital bed at home helpless and scared and I can't get a straight answer from any doctor today. She's begging me to help her and I'm trying everything I can. It's breaking my heart. Her Neuro wants to see her, I called and explained that she is bed ridden, can't bend her enough to get her in a car...his reply was "Hmmmmmm". I again explained her new symptoms and his reply was "Hmmmmmmm". I found a boutique Doctor that will come to her house but he isn't available for 2 weeks.
I don't know what's happening to her. "Hmmmmm" is not giving me any clarity.
She tells me her "legs are flying up in the air" and when I look...not so much as a toe tremor is there. Nonetheless I lay across them and she feels better.
It's hard enough to watch her go through this, it's heartbreaking not to be able to fix her....it's making me insane that nobody will help me just help her...even a little.
So......anyone out there have a suggestion? A creative thought? An off the wall idea?
Sorry about the rant...I just want to help my Mom and today...I can't.
Bless all of you out there taking care of someone with PD...and Bless all of you out there who live with PD everyday.
Is it tomorrow yet?

yekkimo

Veteran Member

Joined : Apr 2003

Posts : 1283

Posted 11/3/2009 1:24 AM (GMT 0)

Ronnies girl,My thoughts,and prayers go out to you,and your mom.Some suggestions1.make contact with a pd support group.2.contact your local visiting nursing association.3.Touch base with hospice.4.If youcan't get a Dr.to her take her to a Dr.at the hospital E.R.via ambulance.That will get her neuros attention,and I would not hesitate to dial911 if needed.Wish you the best stay in touch,and welcome to HealingWell.Ed

Ronnies_girl

New Member

Joined : Nov 2009

Posts : 10

Posted 11/3/2009 4:12 AM (GMT 0)

Hi!!! Thank you!
I put all of my nervous energy to work after I wrote today! I found a Doctor that will come to her house AND work with her Neuro!!!! (He's this towns best kept secret, guess I need to have a meltdown before I could find him). I faxed the hospitals and asked her Neuro to copy all labs, CT's, charts etc to the "house call" Doctor so he'll have all the info. I think I see a glimmer of hope! I also contacted hospice but they said they need Doctor's orders so I'm going to work on that as well. All I want for my Mom is a tiny smidgen of comfort...
Maybe I can sleep tonight having found the new Doc!
Thanks for your suggestions...it is probably time for a support group...it's been a long 16 years.
Take Care~

lizzy4451

Forum Moderator

Joined : Jun 2005

Posts : 476

Posted 11/3/2009 7:36 AM (GMT 0)

Ronnies_girl,

You have a wonderful commitment to your Mother and her health. She's a lucky person to have you on her side!

I agree with Yek/Ed. I would also try to get more than a 'Hmmmmmm' outta her docs. I would try to state some specific symptom(s) and ask specifically how to deal with them - meds/physical therapy/ other. I'd try to get your docs to use their expertise to assist you in dealing with your Mom's symptoms.

lizzy4451

Ronnies_girl

New Member

Joined : Nov 2009

Posts : 10

Posted 11/3/2009 1:23 PM (GMT 0)

Hi Lizzy,

Thank you! It's just been my Mom and me since I was little.
I have two wonderful caregivers who help my Mom (and me). They are heaven sent!

Yeah, so I think I am on it...

Made a list of all new things happening (symptoms, very detailed).

Made a list of questions about treatments.

Made a list of questions about different meds.

I hope this new "house call" Doctor is going to be the ticket. I talked with him yesterday on the phone and for once someone was asking me a million questions rather than me trying to rattle everything off before the Doctor was ending the call. Hope and Faith renewed!

My fingers are crossed!

Take Care~

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